HAPPY 6th BIRTHDAY, MATTHEW ISAIAH GONZALEZ
Matthew Isaiah turned 6 years old today! What a blessing it is and such a miracle. I know that most people when their kids have a birthday, they are so happy and think back over the last year. Some people, like us, view each day and YEAR as MIRACLES given to us from GOD. Most of you probably know our sons miracle story, so I will only BRIEFLY give you some of what happened those early days of his little life. Our son was born after WONDERFUL 39 weeks of being in my body. It has always been such a blessing for me to carry my babies for 39 weeks. I KNOW how it is to lose babies before they are ready to be born. So, when we were pregnant with Matthew, we felt so blessed and happy, just ready for our baby. Our pregnancy was as perfect as the first pregnancy. We eagerly awaited his arrival and planned his c-section to happen on May 21, 2004. Wow, we were so excited and ready. On that morning, we got wheeled into the OR ready to have our baby and at 8:54am, our son MATTHEW ISAIAH was born…he was beautiful…he gave a CRY…they took him away to clean him up and as they were putting me under to finish me up, I heard someone say, “he is not changing color’…I didn’t know what that meant…until a nurse came into my recovery cubical and said, ‘where is Mr. Gonzalez? Your baby has a heart defect & serious lung damage and needs to be transferred NOW” and walked out. The next couple of hours were every parents NIGHTMARE…knowing that EVERYTHING was out of your control and you were given a prognosis from the pedi cardiologist that he “didn’t think he would make the transport” he was that critical…that your newborn baby was at a different hospital from me, the mommy and that he was undergoing emergency heart cath and open heart surgery at 8 hours old because they found out that he had a rare heart defect called TOTAL ANOMALOUS PULMONARY VENOUS RETURN (TAPVR)…unless you have been thru this, you have absolutely NO IDEA what we were thinking or feeling…I can’t even TELL you what kind of thoughts were going thru our head. All we could do is PRAY and ask others to PRAY for our son…and they DID…we had sooo much support and sooo many PRAYERS for this little boy from all over the world…I remember being given a private room when there were NO PRIVATE ROOMS on the post partum floor…and KNOWING that that happened because they felt things were not going to go well…I remember TRYING to use a pump to express milk and crying because I didn’t LIKE to use those !@#$$ pumps and HAVING to….and just praying and waiting for the phone calls from James to let me know how things were going during his surgery….and being told that it was SUPPOSE to be a 4 hour surgery but instead, because of excess bleeding, he had to go thru the surgery AGAIN to stop the bleeding and it took a total of 8 hours…of being wheeled into the PICU on a vent and the ECMO machine…a VERY sick little boy….the prognosis of UNKNOWN….of him being taken off ECMO at 5 days old and told that there was a 1% chance of survival (and that was being nice) because he was blue again…the color of purple/blue color…of watching and KNOWING that your beautiful baby boy could be GONE by the days’ end….of finally being able to hold your baby boy…of loving on him, talking to him and just PRAYING over him…and the memories continue to be BRIGHT and STRONG in my mind….we witnessed a MIRACLE that day when by the GRACE OF GOD, he DID NOT pass away like EVERYONE thought…that by the GRACE OF GOD, he continued to survive, defy and to PROVE every doctor wrong that because of that, doctors couldn’t GIVE me a prognosis for him because they NEVER knew what Matthew would DO! 98 days in the PICU….98 days of him fighting for his life and him DAZZLING the staff with his beautiful smile and spirit….
And THAT is our son MATTHEW….that is this little boys FIGHTING spirit. He has been just such an INSPIRATION for our family. He reminds us everyday of how PRECIOUS life is and how MIRACLES happen. We always have said that Matthew must have seen GOD because this little boy is so HAPPY all the time. That is how we explain his beautiful and happy spirit. He has already SEEN such a HEAVEN and that has made him always to have such a BEAUTIFUL smile. RARELY has he been bad tempered or unhappy…when he is, we know that SOMETHING is wrong or he is feeling ill.
Right now, at 6 years old, this little boy has been thru things that NOBODY should ever have to go thru. This little guy has been in an ambulance, being transferred CODE 3, while being bagged and intubated due to having had a massive seizure lasting sometimes over 2 hours, over 10 times in his little life. He has been taken by AIR AMBULANCE (helicopter) 2 times due to the same as above!!!! He gets pounded on by a CPT vest machine for 2 times a day everyday while getting a nebulizer treatment due to his chronic lung disease. And if he is also ill because of respiratory infection (which he gets sick often), then he might have to get the treatment every 2 to 4 hours thru out the day, be on oxygen and then get suctioned sometimes down his nose to TRY to help him get all the crude out of his lungs. And while I am doing this, I am having to HOLD HIM DOWN, because he is kicking and crying thru it all and just making your heart hurt because you KNOW it is just so MUCH for this little boy. But after it is all said and done, he will sit up and smile. Our son….he is just such an AMAZING little boy with sooo much strength and such a SPIRIT. And THANK YOU GOD, he is so STUBBORN! It is a blessing…he sleeps with an oxygen monitor on him every night and we are always listening for alarms to go off.
But beyond his illness, he is learning so MUCH. He is g-tube fed but he can eat, and when he WANTS to orally eat, boy, he can go to TOWN! We LOVE watching him eat food and munch and ASK for food. He may only eat as much as a 6 month old, but every spoonful and bite is just such a BLESSING. Some days he surprises us by eating FOUR chicken nuggets!!! Yep, that is our boy. And talking, well, that is definitely still a struggle for him. He has low tone and apraxia which causes him to have a very difficult time with his speech (and eating too). But he is working hard on it. He does have a communication device that he is using more and more to communicate with us. He amazes his teacher & therapist every time. We are so proud of him! He also knows so many SIGNS. Unfortunately, because of his low tone and lack of coordination, he has a harder time MAKING the signs. But he tries so hard and when WE make the signs, he knows what we are saying. In school, he is doing AMAZING and is progressing along very well. He is cognitively there and is so SMART! He loves to mess with the teachers and play with them. He loves to make them laugh!
And walking, well he is on his way. He can crawl up the stairs on his own. He can walk up & down the stairs if we hold one hand and he holds the banister with the other. Slow and steady he gets there. He can pull himself to stand on almost any surface. He learned how to pull himself up from the floor to stand using a kitchen COUNTER. And WHAT was he reaching for when he got up there and WHY did he want to do that?! Well, because my IPHONE was sitting on the counter and he wanted it! And he got it too! We have to be careful now because he will watch us from the living room to see where we set it down and if we are not careful, well, he will be making TONS of phone calls! Several of James buddies know that if they get called and no one response to the hello, that it is probably Matthew and they start to talk to him!! Awwww….in therapy, he has learned to use a walker without ANY SUPPORTS or STRAPS on him…just him and a walker in front of him walking all over the place there!!! Just amazing! He is progressing well with that area and we just need to keep pushing him. As long as he wears his AFO’s on his feet he does well. Just progressing nicely in this area. I hope he DOES learn to walk because he is getting HEAVY. He is solid!
Our son Matthew…what a JOY and how PROUD we are of him. He brings a smile to our faces with just a look. He LOVES his brothers and they love him. And daddy, well, you can just IMAGINE the love he has for him!!! It is ALL about DADA! That is ok. Not many people are as BLESSED as we are with Matthew….to have such a SPECIAL child in their lives, IS a BLESSING. I look back some days at when he was born and remember thinking, wondering, knowing that his FIFTH day, he would leave this earth and our arms…and PLEASE don’t think that we gave UP on him, because that did not happen. What we did was we GAVE HIM UP TO GOD and we told God that whatever HE decided, we would understand and LOVE HIM…but we were PRAYING soooooooo hard that THAT was not GOD’s plans for him. And PRAYING so hard that he be HEALED and asking others for those prayers. We could NEVER imagine that we would be parents to a special needs child. But we always knew that God had BLESSED us with Matthew and that Thru God, we know that He will always help Matthew and help US in all that there is to do. There is no fear or any sadness in our hearts for ANYTHING having to do with Matthew. To us, he is a normal child and we treat him as such. Of course he has limitations and we work around everything, but we LOVE to go traveling and go places and everywhere WE go HE goes!!
And HERE WE ARE…our beautiful MIRACLE MATTHEW ISAIAH has turned 6 YEARS OLD. Every DAY, hour, minute, second of his life has been precious and a blessing to us. We couldn’t imagine a day without our Matthew with us and PRAY we never have to! We know that we were VERY BLESSED that God left him with us. We KNOW THIS. That is why we are ALWAYS THANKFUL TO GOD!!
So, that I have probably caused those that didn’t need glasses to need some, I will finish with a couple of montages that I made. The first one is a picture montage of our MAKE A WISH TRIP (I know a YEAR late!!) and the 2nd one is all about Matthew!! And you will see that the first part is probably familiar because it IS! We NEVER want to forget what a miracle he is….but the 2nd part is more updated pictures of him up 6 years old. We hope you enjoy it!!
MAKE A WISH MONTAGE:
MATTHEW ISAIAH IS 6 MONTAGE!:)
THANK YOU ALL for all the thoughts and prayers for this little boy thru out the years....we have been so BLESSED to have ya'll in our lives. GOD BLESS!!
love,
The Gonzalez family
Friday, May 21, 2010
HAPPY 6th BIRTHDAY, MATTHEW ISAIAH!
Posted by Maria at 7:37 AM 1 comments
Labels: make-a-wish, matthew
Sunday, May 09, 2010
being a mom....
has been the most important thing in my life....who knew that i would have 3 BEAUTIFUL BABY BOYS! i would have never had imagine this being my life and how BLESSED i would feel IN IT! THANK YOU GOD for blessing me with these boys....they are so unique and special in their own way....Alex is just something else...such a SMARTY and JUST LIKE ME!! we butt heads all the time because we are both sooooo STUBBORN! but still, just the smartest most loving little boy in the world!! and then there is Matthew....my little miracle...who is such a SPECIAL little boy who God has intrusted into my hands....He must have seen something in me to bless me with him....just such a JOY and such LOVE comes from this little boy..wowowowow....and then there is Joshua...my baby boy...my 'mama's boy'....he is just so cute and funny and always wanting to give hugs and kisses...he is the little boy that surprised us with his presences....we thought we were thru at 2 and then GOd blessed us with him...such a JOY and such a CUTIE!
THANK YOU GOD for my babies.....i pray always that HE GUIDE me in ALL that i do ESPECIALLY in how i RAISE my babies....
here are 2 poems that i LOVE!!! the first one is for ALL mom's and the 2nd one is for mom's of SPECIAL NEEDS...ENJOY!
When God Created Mums
by Erma Bombeck
When the good Lord was creating mothers, He was into his sixth day of overtime when an angel appeared and said, "You're doing a lot of fiddling around on this one."
And the Lord said, "Have you read the specifications on this order?
She has to be completely washable, but not plastic, have 180 moveable parts, all replaceable, run on black tea and leftovers, have a lap that disappears when she stands up, a kiss that can cure anything from a broken leg to a disappointing love affair and six pairs of hands."
The angel shook her head slowly and said, "Six pairs of hands? No way!"
"It's not the hands that are causing me the trouble," said the Lord. "It's the three pairs of eyes that mothers have to have."
"That's on the standard model?" asked the angel.
The Lord nodded, "One pair that sees through closed doors when she asks, "What are you kids doing in there?' when she already knows. Another in the back of her head that sees what she shouldn't but what she has to know. And of course, the ones in front that can look at a child when he gets himself in trouble and say, "I understand and I love you" without so much as uttering a word."
"Lord," said the angel, touching his sleeve gently.
"Go to bed, tomorrow is another ...."
"I can't." said the Lord.
"I'm so close now. Already I have one who heals herself when she's sick, can feed a family of six on half a kilo of mince and can get a nine-year-old to stand under a shower."
The angel circled the model of a mother very slowly.
"It's too soft," she sighed.
"But tough," the Lord said excitedly.
"You cannot imagine what this mother can do or endure"
"Can it think?"
"Not only think, but it can reason and compromise," said the creator.
Finally the angel bent over and ran her finger across the cheek.
"There's a leak," she pronounced.
"It's not a leak." said the Lord. "It's a tear."
"What's it for?"
"It's for joy, sadness, disappointment, pain, loneliness and pride."
"You're a genius," said the angel
The Lord looked sombre and said "I didn't put it there."
----------------------------------------------
The Special Mother
by Erma Bombeck
Most women become mothers by accident, some by choice,
a few by social pressure and a couple by habit.
This year nearly 100,000 women will become mothers of handicapped children.
Did you ever wonder how these mothers are chosen?
Somehow I visualize God hovering over Earth
Selecting his instruments for propagation with great care and deliberation.
As he observes, he instructs his angels to take notes in a giant ledger.
"Armstrong, Beth, son. Patron Saint, Matthew."
"Forrest, Marjorie, daughter. Patron Saint, Celia."
"Rutledge, Carrie, twins. Patron Saint...give her Gerard. He's used to profanity."
Finally he passes a name to an angel and smiles. "Give her a handicapped child."
The angel is curious. "Why this one, God? She's so happy."
"Exactly," smiles God. "Could I give a handicapped child a mother who knows no laughter?
That would be cruel."
"But does she have the patience?" asks the angel.
"I don't want her to have too much patience, or she'll drown in a sea of self-pity and despair.
Once the shock and resentment wear off she'll handle it."
"I watched her today.
She has that sense of self and independence so rare and so necessary in a mother.
You see, the child I'm going to give her has a world of it's own.
She has to make it live in her world, and that's not going to be easy."
"But Lord, I don't think she even believes in you."
God smiles. "No matter, I can fix that. This one is perfect. She has just enough selfishness."
The angel gasps, "Selfishness? Is that a virtue?"
God nods. "If she can't separate herself from the child occasionally, she will never survive.
Yes, here is a woman whom I will bless with a child less than perfect.
She doesn't know it yet, but she is to be envied.
She will never take for granted a spoken word.
She will never consider a step ordinary.
When her child says momma for the first time, she will be witness to a miracle and know it.
I will permit her to see clearly the things I see--ignorance, cruelty,
prejudice--and allow her to rise above them.
She will never be alone.
I will be at her side every minute of every day of her life
Because she is doing my work as surely as she is here by my side."
"And what about her Patron Saint?" asks the angel, his pen poised in the air. God smiles.
"A mirror will suffice."
Posted by Maria at 8:18 PM 0 comments
Tuesday, May 04, 2010
PRAYER REQUEST PLEASE!!!
Hola everyone...i hope everyone is doing amazing....well, I am writing to everyone i know for some prayers please for The Mireles Family....They are my relatives that are in DESPERATE need of some prayers. On 4/30/10, my cousin David's 15 year old son had a VERY bad accident and he is currently in critical condition in the hospital....He has had surgery and is in a drug induced coma on a ventilator..of course you can just imagine what they all must be going thru....so, i am asking for them, if you could please send out some positive thoughts and prayers for this little boy who is in a fight for his life......He is in for a VERY VERY long road of recovery....prayers for the Family that is anxiously waiting for him to get healed and home where he belongs.....this is every parents worst nightmare......here is a website set up so that people can get some info on Dylan... www.dylanmireles.blogspot.com We all know that PRAYER WORKS and that we personally have seen how prayers can bring about a miracle.....soooo, please, any THOUGHTS and PRAYERS for Dylan and his family would be apprecaited GREATLY!!! and please, pass it along to other prayer warriors out there!! "GOD IS GOOD!!"
Thank you sooo much!! TAKE CARE AND GOD BLESS!!!
"Thru God, All things are POSSIBLE..." Matthew 19:26
Posted by Maria at 6:47 PM 1 comments
Saturday, May 01, 2010
First Communion!!! :)
My beautiful son made his 1st communion today at PRICE OF PEACE CATHOLIC CHURCH!! we are SOOOO PROUD of him....he has study HARD for the last 2 years and has really matured in his religous life! a mommy and daddy could not be more PROUD of him...he knows more than US most times!!!
we also had a little party for him and it was nice to see family and friends around us....everyone was so awesome to come! THANK YOU!!!
Posted by Maria at 6:44 PM 0 comments
Labels: alex
Thursday, March 11, 2010
CATHOLIC FAMILIES OUT THERE.....
HOLA!!! i have wanted to post this for a while but just have not had the time to do it...so here it is!! there a alot of things that i have found for myself and my family that are CATHOLIC BASED...sooo...i just wanted to SHARE...
i am CATHOLIC and i homeschool my kiddos and this year, we used a NEW curriculum that is CATHOLIC BASED and it is AMAZING!!! i, personally, am LEARNING alongside my 7 year old, my FAITH!!! what an AMAZING thing...it is from CATHOLIC HERITAGE it is just a GREAT learning tool for my kids!! WE are learnign soooo much!!
i also discovered a CATHOLIC HOMESCHOOLERS TOOLBAR that i just installed that is VERY NICE and has some GREAT links to use while i homeschool!! LOVE IT! it is called CATHOLIC GADGET and you can find it HERE. I JUST got it and i already LOVE IT!! :) has a NICE list of blogs from families that are catholic and HOMESCHOOL!!
then there is the purchasing place called AUTOM and it is an ONLINE and CATALOG place to buy ALL things Catholic!!! i mean, there prices are AMAZING and they have the BEST stuff!!! LOVE IT!! my MIL bought my beautiful BIBLE stand there and it is AMAZING!! we have also bought other things there...very nice place to get ideas too!
ok...then i have a IPHONE...and i am HAPPY to say i LOVE LOVE LOVE my IPHONE!!! yes, i said it! best phone EVER!! i have SEVERAL applications that i LOVE....i have 3 that i have that are becoming INVALUBLE to me as a Catholic....here theY are AND YOU CAN GET THEM OFF ITUNES!!
IMISSAL...if you are Catholic and have an IPHONE, it is a MUST have! why?! well, it is the MISSAL for mass every sunday! in church, i probably get some looks cause i am following the READING right off my phone as they are read in mass....EXACTLY...i can read them before hand and during the mass....it also has prayers, bible verses, and other Catholic related stuff...i LOVE IT!!!!!
if you look CATHOLIC in ITUNES and you should find something that says PRAYERS, 1000+ CATHOLIC PRAYERS ($.99) by SURGEWORKS, INC....i found this YESTERDAY and i am LOVING all the novenas, prayers, daily prayers, prayers to saints, Acts and soooo much more!!! just AMAZING!!! i can't wait to use it when i need a quick pick me up and to help my boys learn their prayers!! LOVE IT!
HOLY BIBLE by YOU VERSION on itunes is just AMAZING!!! it keeps the WHOLE bible at my fingertips! and the GREAT plus to this is that i started one of the programs so that i can read the bible in a YEAR!!! and i got to chose WHICH bible version i wanted, which i chose the NEW AMERICAN STANDARD BIBLE...and the program i started was the CANONICAL style...and it has a certain read for every day...and if you keep up with it, you should finish your bible in a YEAR!! never done that before so i am EXCITED!! i love that i can just take a moment in my day, whip out my phone and start reading my bible for the day!! LOVE IT!! :)
CATHOLICTV was something i downloaded yesterday and i am not sure about it....but basically, you can WATCH CATHOLIC TV programs like the Mass being said, Rosaries being said, other activies...you do need to be connect to a WI-FI to watch the videos but i figure if i am home i can do that too...pretty neat little gadget...havent tried it out yet though!
soooo, that is it! for now...but i am so excited about this.....my family and i are coming more together as we learn about our FAITH with Alex being homeschooled using a Catholic curriculum....LOVE IT!
i hope ya'll enjoy and GET YOU SOME!!! BLESSINGS TO ALL!!
Posted by Maria at 9:54 AM 2 comments
Labels: homeschool
Wednesday, March 10, 2010
COLITIS....YUCKY!
well, i have been diagnosed with COLITIS and i am NOT HAPPY!! :( it has been what has caused i think my recovery from my surgery to go soooooooooo slow!! i am either HAPPY or MISERABLE due to my tummy...really no in between! and a week ago, i TRIED taking some antibiotics that my dr prescribed for me and i was SOOOOO NAUSEATED, i couldn't stand it and i stopped taking it....then tuesday, he put me on a NEW medication called VANCOMYOCIN and it is a formulary medication and the last ditch effort before....i have to be admitted into the hospital to be treated there....and i SURE don't need or WANT that!!!! soooo, even though this stuff is NASTY, i am doing well on it and taking it and NO NAUSEA!! :) i have to take it every 6 hours for 10 days....i WILL DO IT!! so far so good....i just want to END all of this and keep moving FORWARD...i am still having signs of reflux but i think it has more to do with all this COLITIS stuff than real reflux...my tummy is just not the same right now! :( anyway, all could be WORST so i am VERY BLESSED!!! i had a MISERABLE day on monday night/tuesday....i was up on monday night from 1000pm all the way to 4am on the toilet and slept in a CHAIR next to the bathroom...MISERABLE! AND then tuesday, i was just BEAT...i felt HORRIBLE..adn then i had to go to the dr and that was when he gave me the new med....i PRAY this helps...A WONDERFUL friend of mine prayed for me/with me on tuesday and i KNOW that is what helped me....i have been forgetting to PRAY for MYSELF! i pray for others but rarely for myself....and when i do, they are answered...i just need to remember MYSELF!!!
anyway, i will continue to PRAY that this COLITIS resolves itself and i get back on track....eating wise, i am doing AMAZING...can basically eat anything just have to chew it VERY VERY THOUROUGLY...if i don't, man, it HURTS!! AND it is SCARY cause you can FEEL your food STUCK in your throat and not going anywhere...and you can FEEL it SLLLLIIIDDDDIIIINNNGGGGG down your throat...not a confortable feeling...it feels like a BIG ROCK going down....and there is NOTHING you can do but wait for it to go down....so i have LEARNED to take it slow....fun!
Posted by Maria at 9:24 AM 0 comments
Labels: me
Saturday, February 20, 2010
boy, that surgery was HORRIBLE!!! :(
well, i had my surgery on WED FEB 17 and it was....HORRIBLE!!! :( i have had 3 c-sections and this takes the CAKE!!! well, i had a 5 HOUR surgery and then one hour AFTER trying to wake me UP!! the way it was explained was that my HAITAL HERNIA was the size of a mans fist, then my stomache went THRU the hernia into my CHEST above my DIAPHRAM....so they had to PULL my tummy out of my chest, FIX the hernia with some WIRE MESH, then REDO my NISSEN WRAP and then ANCHOR my stomache down so that it doesn't go back UP into my chest by placing a GTUBE for 6 weeks ....yep...not good at ALL!!! and then i am on a LIQUID DIET for about 4-6 weeks!! YUMMY!!! and trust me, if i EAT anything that is toooooo big, IT HURTS and it just STICKS in my throat and just SLIDES realllly slow until FINALLY it goes down....not a good feeling...it could take up to 5 mins to go DOWN!!! i was sooooooo miserable after i had surgery while in the hospital...i spent over 24 hours in ICU because i had a collapsed lung and fluid AROUND my lungs (plura effusion) and i was in SOOOO MUCH CHEST PAIN!! MISSERABLE!! and then, about 5 hours before i went to the 7th floor, they brought in someone that had an ARM TRANSPLANT and her room had to be at 80 DEGREES and because our rooms shared a thermastat, MY ROOM WAS SOOOOOOOOOOOO HOT!!! man, it was REALLY bad....and then when i went up to the floor, i was just sooooo miserable...YUCKY!! it was not a good stay...and my FIBRO was kicking my BUTT and those beds were NOT comfy and my back and my chest....and up until the DAY i got out, i could only have 60cc of WATER every 6 hours...yes 60CC!!! that is like NOTHING!! until right before i left...CRAZY! and i could catch my breath and i was just yUCKY YUCKY YUCKY! i could go on and on....bBUT BUT BUT BUT....IT COULD ALWAYS BE WORST!!! sooooo, I AM BLESSED!!!!! BLESSED!!! BLESSED!!! THANK YOU GOD!!! :)
Posted by Maria at 4:03 PM 0 comments
Labels: me
Thursday, February 11, 2010
MATTHEW is in the hospital.....and other news...
HELLO EVERYONE!!
i hope everyone is doing WONDERFUL and enjoying their 2nd month of the year!! as for us, well, we are doing fine....i tell you, i hope we are getting all the 'bad' stuff out of the way EARLY in the year so that the rest of the year would be sssmmmoooottthhhh sailing!!! :)
i just wanted to send out an update.....i know, 2 in 2 months...well, matthew is in the hospital right now....he was admitted yesterday due to a rash ALL OVER that started last week....i am sooooo THANKFUL that we have such a WONDERFUL dr that didn't just blow off his symptoms like most drs would have and instead decided that after seeing him 2 days (mon/wed) that he needed to be admitted cause he was not getting better....they diagnosed him with KAWASAKI SYNDROME....his cardiologist said we needed to play the lottery cause him have TAPVR (rare CHD) and now this (which is also very rare) is just unheard of!! only matthew would say DIFFERENT!!! soooo, this is the earliest diagnosis (we were 72 hours into it) she has ever made so that is a GREAT AND AMAZING thing!! it dropped his chances for an anuerism to 2% or sooo...THANK YOU GOD! they are treating it with IVIG and HIGH DOES OF ASPRIN (5 baby asprins every 6 hours)...they started his IVIG and asprin last night....i am just praying that he responds to it...he has been so miserable now for a couple of days....he didn't ever look like matthew... i had only heard it because JET TRAVOLTA had it when he was 3 and i remember when he died, the mother said that THAT was what caused his death (which was NOT true)...anyway, if you google it is says that young kids get it (which is why it is soooo rare for matthew) and that it imight be caused by cleaning your carpets...not true...it is actually your body fighting itself because there is a virus in it...not a good thing...it does effect the heart, which scared me SILLY!!! and plenty of fluid....he is finally looking a LITTLE better...you can see pics on facebook...he was soooo swollen and red all over....just so you know, the symptoms are ALL OVER RASH, FEVER FOR 5 DAYS, LIPS-SWOLLEN, RED AND CRACKED, EYES-RED (RACCON EYES BUT RED) AND THE WHITES ARE RED TOO (KINDA CREEPY LOOKING), FEET/HANDS- SWOLLEN AND RED, TONGUE- LOOKS LIKE A STRAWBERRY (BRIGHT RED AND HIS TASTE BUDS WHITE) AND SWOLLEN LYMPH NODES(he did NOT have that yet)..as she was reading the signs/symptoms, i just kept nodding........his face just look HORRIBLE!! at first we thought it was a rxn to one of his drugs and we were AFRAID that it would be on of his SZ meds and that would have BAD cause he is on such a 'perfect' mix and dose right now that i sure didn't want to mess with it!!! and neither did his nuerologist! anyway, GOD WILLING we will be getting out of here this weekend....it was funny cause his pedi dr said laughingly, 'well, good news is that there is no holidays this weekend!!" and i had to remind him that valentines day was on sunday and then presidents day was on monday!! he just GROANED!! if you remember, matthew is NOTORIOUS for having 'drama' on holidays or on vacations....just last month he was dx with RSV (i don't think i mentioned that before) on NEW YEARS EVE.....only MATTHEW!!! :) soooo, any prayers or good thoughts would be REALLY appreciated....
as for the OTHER news for the month...i am going to be having surgery next week (17th)...yep, they decided that i needed to have my stomach corrected after all....they think my nissen is fine BUT apparently, all my GERD/reflux symptoms i had been having since i had joshua were because i had a hiatal hernia and my nissen/stomach went THRU it and is now sitting above my diaphram!!!!! so, THAT is why i am having such a time with my reflux/pain...it's getting SQUISHED by my diaphram every time i BREATH!! FIGURES! :) soooo, they are going to pull down my stomach to where it is suppose to be, anchore it with a GTUBE (yes, matthew and i are going to be TWINS cause we will BOTH have feeding tubes) then fix up the hiatal hernia!! now, the gtube is just temporary (about a month) so that my stomache will adhere to the wall there where the gtube...then they will take it out and it will close up and my stomache SHOULD never move from that place again and go back UP! :) i know, WIERD!!! i guess i can say the same thing as i said about matthew....ONLY YOU, MARIA, THIS WILL HAPPEN TO! :) but hey, maybe they can do a little lypo/tummy tuck when they are in there?!?!? i will have to ask the drs about that!! ok...i think the WORST thing about this whole surgery is that i am going to be on a FULL LIQUID DIET for about 3 weeks....i did this 10 years ago when i had the nissen and it was hard then, i can't imagine how hard it is going to be NOW that i have 3 kids!!!!!! the crazy thng is that you can't ''cheat" like any other time...you know, grab a pinch of food here, a bite there...nope, if i did that, i could CHOKE to death!! my esophagus will be so swollen, it will not let anything but liquid thru!! so, instead, i will be eating applesauce, jello, pudding, broth with no noodles or anything, and ensure for 3 weeks....YYYYUUUUMMMMYYYY!!!! james says he will be on the diet WITH me...i give him 2 days before he caves!!! i am just wanting this to be done and over with....one of my aunts jokingly asked 'what are you giving up for LENT? SOLIDS?" which i thought was sooo funny! i had actually not realized that i would be having surgery ON ASH WED!! who knew?! it has got to be a good day since it is a HOLY day of obligation! :) i need to make sure i get some ashes from somewhere after my surgery....i just MIGHT give up solids for 40 days and nights...maybe....of course, my luck,you would think that i would lose ALLLL this weight and i end up gaining it or something....i NEED to lose some...i hope that is an ADDED benefit!! ;)
anyway, my other 2 boys are doing WONDERFUL....alex is doing great in his class...he is just sooooo smart! :) he amazed me the other day (every day) when he asked what SUDUKO was...i showed him what the concept was and that was IT, he figured it out and started working on a puzzle IMMEDIATLY!!! it took me FOREVER to figure out WHAT i was suppose to do!!!!!!! and i am so proud...his math, he is doing GREAT! he is adding/subtracting/borrowing/carrying over up to the 100's and working on the 1000's! and again, i didn't have to really teach him anything...just showed him what to do one time and he was OFFF!!!! :) love it! and GOD WILLING, this year in May, he will be making his FIRST COMMUNION and we are sooooo excited and happy!!! :) big boy...and this week, he started his first HOMESCHOOL PE CLASS and boy, he LOVED IT!! there are about 13 kids in it and she made them do laps, jumping jacks, sprints, jump rope etc and he said he had a BLAST! he was sooo worried about the week after i had my surgery and who was going to take him cause he didn't want to miss! i told him that i would take him...he LOVED IT!
and joshua...really, what can i say...he is such a CUTIE, and such a SMARTY...i love when he talks and tells me 'love you', and just huggs and loves on me...he is still a mama's boy and i am LOVING IT! ;) he is still a little bully!!! he will go up to matthew and wrestle him DOWN!! and we have to be VERY careful cause he and matthew fight alllll the time! and i mean FIGHT....i tell you, in a former life, i don't know WHO joshua was....maybe a soldier or something cause he knows how to 'shoot' a rifle and gun (even with sticks and such), he can box and fight, wants to play with KNIFES, SCISSORS & FIRE and he LOVES to play all kinds of sports...scary!!! just the other day, we had SUCH a scare cause i had left my pill box in my purse and he got a hold of it and took a couple of bites of my PILLS!!!!! CAN YOU SAY OMG! how scary?! we had to take him to the ER per poison control cause i didn't know how many he had taken....but THANK GOD, everything was just fine...IF he actually had any, it was really minute....it sure taught me a BIG lesson that i guess i had forgot or just was not as watchful but after this, i am looking at EVERYTHING around him to make sure he can't hurt himself...again, ONLY JOSHUA!!!
and james is doing great...such a AMAZING hubby and daddy! he is working HARD and just being recognized for it...we are sooo proud of him....he is getting ready for the BIG move....he is trying to find his soldiers other places to move them to (other battalions)...it's alot of work...not to mention that HE has to find a job himself!!!! :) but again, that is my MAN!!! love him...he and i celebrated our 13th wedding anniversary on 2/1/10...it has been 13 years of BLISS....i have always been soooo THANKFUL to GOD and felt soooo BLESSED that GOD brought him into my life...he is just an amazing daddy and husband....not many would be able to go thru what we have gone thru (with matthew) and still be around....not many would LOVINGLY, WILLINGLY learn everything they have to do so that their children would be healthy and happy...he is something else! THANK YOU GOD!
anyway, sorry to 'talk' your eyes off....i really just meant to talk to you about matthew but i thought i would throw everything else in...i would appreciate ANY thoughts and prayers for our beautiful son MATTHEW....he has been thru soooo much in his life...and in the last month and a half, he has had to deal with RSV, tons of treatments, suctioning and steroids and now THIS!!! i just pray that there are no lasting effects from this....
and if you can spare a thought for me, i would also appreciate any thoughts and prayers for me for next week when i have my surgery...i worry about my boys and leaving them for a couple of days....again, i am just so THANKFUL that james is a GREAT father that i KNOW they will be taken care of WAY beyond anything! and for all those weeks on the liquid diet...YIKES!!!
ANYWAY, take care and GOD BLESS....i will be updating on matthew on FACEBOOK and i will try to do on my BLOG too (www.blessingsinmylife.blogspot.com) ....if you are on FACEBOOK and want me to add you to my 'friend', just email me with your info and i will look for you on FB...apparently, you can TRY to look for me but there are SOOOOOO many ME's out there, you can't find me!!! :)
ok....GOD'S BLESSINGS TO ALL!!!
MARIA, JAMES, ALEX, MATTHEW & JOSHUA
Posted by Maria at 7:51 AM 1 comments
Labels: family update, matthew, me
Friday, January 01, 2010
HAPPY NEW YEARS YA'LL!
GREETINGS and MANY BLESSING TO YOU!!!!
we hope that the last decade has been AMAZING for everyone and that 2009 was just as wonderful! i know it has been a VERY VERY LONG TIME since i have updated ya'll on our family so i thought this would be a great time to do it!! :)
WELL, this was something i posted on my FACEBOOK so i thought i would share it here too:
HAPPY NEW YEARS! well, this decade brought MANY changes to my life one of which is MOTHERHOOD, having the most PERFECT babies ('02, '04, '07), THANK YOU GOD....it brough to me the most PURE and LOVING knowledge that MY GOD IS AN AWESOME GOD and THRU HIM, ALL THINGS ARE POSSIBLE...GOD showed us a MIRACLE when he blessed us with MATTHEW and how AMAZING the power of PRAYER is...also, bring many new people in my life because of our Miracle baby, Matthew, who we would have NEVER had in our lives...nurse, doctors, therapist, new friends, just so many...
THANK YOU GOD for a WONDERFUL DECADE and an AMAZING 2009! on with the NEW...I WILL EMBRACE this year with all that YOU give me, knowing that i am LOVED and am BLESSED ... because i have the most important thing....GOD IN MY LIFE......
and that is just a FRACTION of what the last decade and year has been like....James and I started our family in the 2000's and what a BLESSING that has been in our lives.....
well, Alex has been doing great...he is 7!!! :) although right now, he is SICK as are ALL of us...not the way i wanted to start the new year...other than that, he is doing GREAT at his 2nd grade schooling...we are still homeschooling and he is loving every minute of it...much better this year than last when he kept TESTING me....he is such a smarty and loves to figure out things...i am hoping to get him started on SOMETHING that will having him doing some fun stuff/learning with others...maybe a sport or maybe something academic...not sure what he would love to do...if there was a CLASS on LEGOS, STAR WARS OR WII i know he would be in his element!! :) but other than that, he has found his new best friend...his baby brother josh...they are forever playing together and since baby brother totally looks up to big brother, it is a plus...he copies everythign that alex does!!! he follows him everywhere....and with matthew, well, it is definetly a test of patients when it is matthew turn at the WII and matthew loves to push the home button and drive big brother a bit crazy!!! but he loves his brother matthew and loves to just mess with him!! :) WONDERFUL big brother!
Matthew is doing fine...when he is not SICK like right this minute!!! unfortunatly, this new years brought him much illness....right now, we are doing our BEST not to let him get put in the hopsital...we just found out YESTERDAY that he has RSV....not good with his chronic lung disease...it is that ONE dx that we ALWAYS were worried if he got...soooo SCARY!!...he looks and feels really bad and is currently on oxygen, 2 antibiotics, neb treatments every 3 hours and oral steroids and a SHOT of ROSEFIN at the ER yesterday....he is barely keep his o2 sats up but he is working hard at it...poor baby....we had to dust off our oxygen equipment, it had been that long since he had been on it!! but, right now it is touch and go...he is a really sick little boy that the dr is PRAYING will stay out of that hospital...so are we!! but, onto other things, he has been doing wonderful in his kidergarden homebound class....his teach is AMAZING and he is really learning with her! he loves class time and she is teaching him SIGN!!! LOVE it!! and then his speech therapist thru the school is also amazing..he loves MS P and loves when it is time for her to come over...they are working on his talker and he is doing great!! my little man! he is also doing great in his PT/OT!!! he is sooooo close to walking now with his independent walker...he is making big strides in that department!! as for sickies, that has also been a blessing EXCEPT for tummy bugs...he has had 2 and that has really thrown his schedule off and now with RSV, well, he is doing pretty bad right now...anyway, he loves to torment his baby brother josh and loves to mess with alex...typical 5 year old!!!
well, onto our 2 year old....JOSHUA...well, what can i say....he is that little boy that has done EVERYTHING the other 2 boys NEVER have done...bite, hit, kick, jump off furniture, eat bugs, throw tantrums, not listen, and the list goes ON AND ON AND ON!!! ! OK, he is going to give me the GREY HAIRS!!! it is really funny cause it is soooooooo much 'josh, no' josh stop, etc etc...that is all you hear and he is not afraid of ANYTHING!!! he is really something....but he is sooo loving on top of that and loves to get hugs and kisses and loves to cuddle....he LOVES to follow big brother ALEX around and repeat and do EVERTHING he does....his Godfather (a police officer) asked us who taught him how to 'pretend' shoot a gun/shotgun...he is soooooo acurate on how he places his hands and how he looks down a site, it is SCARY!!!!!!! and he has been doing this since he was about a year old!! i sometimes wonder what he did in another life?!?!?! and then he is also a PRO with balls of anykind and has been since a baby! he throws a ball right at you, no matter what size, and FAR TOO and he can hit a baseball thrown at him with a bat, no matter how SMALL the ball is and how thin the bat is!!!! he can throw a basket ball in from FAR AWAY and make it and he is just a sports fiend!!! we know he will be our athletic kiddo!! he loves to TORMENT his big brother MATT and they are ALWAYS FIGHTING!!! santa had to bring them almost the EXACT SAME THING cause he knew if one had something, the other wanted that same one!!! boy, we have to keep them apart most days cause all you hear is one or the other crying or yelling!!!! anyway, he is doing GREAT!!
as for james, he is doing great too! his battalion at work is going away!! so, he is going to be getting a new position SOMEWHERE in the state of texas...we don't know what the future will bring our way or where we will be stationed but we SHOULD know by sept when it has 'J' out...but other than that, he is doing AMAZING and being in love with his boys...he can't seem to get enough of them!! :) he has enjoyed this last year home and we just pray every day that it doesn't come down that it is his 'turn' again....
as for me , well, i am doing GREAT!!!! other than having been dealing with my FIBROMYALGIA AND GERD this year, all is well. i have had many test, CT scans, MRI's, endoscopies and am currently on meds for all the above...it has been a bit stress full cause it has really escalated and i have been in pain for something everyday but it is starting to become unbearable where i need to take meds....and my GERD is back and they told me that my NISSENFUNDIPLICATION had slipped and that was why i was having so much gastro issues...so, right now, i am treating it with meds for as long as that works...we shall see what happens after that...i am just happy that FINALLY, i am being seen by a GASTRO DR and a RHEUMOTOLOGIST too!!! finally MEEEEE!! :) ANYWAY, all is going well, enjoying being with family and homeschooling! trying to get my clutter in order....when i find the time....loving my family...
if you keep up with our BLOG (www.blessingsinmylife.blogspot.com) and have noticed a LACK of content recently, it is that i am now ADDICTED (there i said it) to FACEBOOK!!! YES, facebook is such an AMAZING place to reconnect with family, friends and finding old friends.....i love the GAMES that you can play on it and just the posting of everyday life....it is a FREE website that lets you connect...it is not FLASHY like MYSPACE, no crazy music or anything, it is just a posting board where you can post 'what you are doing' and others can comment and see what is going on..with this being my 20th anniv since i graduated from high school, i have reconnected with MANY MANY friends from highschool that i had not talked to SINCE high school!!! :) and family, some that i don't ever talk to unless there is a wedding or funeral, i get to 'chat' with and keep in contact with all the time now!! it is nice to see what family and friends are doing....sooo, if you have NOT gotten a FACEBOOK ACCOUNT (www.facebook.com), come on over and look me up!! you can find me with this email address OR under my FULL NAME...i would love to connect with everyone!!
well, that is it...the FIRST LLLOOOONNNNGGGG email from me for the new year! you know you missed my letters!! ;) i have missed it too! it has been too long since i connected with everyone!! i will TRY to keep them coming!! i will try to post some pics of the kids on my blog next week and also, if you find me on FB, you can see some there too!! (hint hint!)
ok, FROM OUR FAMILY TO YOURS, HAPPY THANKSGIVING, MERRY CHRISTMAS & HAPPY NEW YEARS and all the other HOLIDAYS that go in between!!! we know we are soooo BLESSED to have each adn everyone of you out there!!! WE LOVE YA!!! MANY BLESSING to you and your families for the coming year!!!!!!
TAKE CARE AND GOD BLESS!!!
LOVE,
JAMES, MARIA, ALEX, MATTHEW, & JOSHUA
Posted by Maria at 6:50 PM 1 comments
Labels: family update
Friday, December 18, 2009
HAD A DAY DATE...
yep, grandma watched the boys for us while james and i had a "DAY DATE" and we finished up our 'STUFF' for everyone!! yayayayayaya!!! it was nice to just get away for a couple of hours and do what we had to do....it was funny cause we stopped off at SUBWAY and i jumped off and james stayed in the car....with the kids...that were NOT IN OUR CAR!!! heheheheh...we were soooooo use to one of us jumping out and the other staying with the kids that it was just INGRAINED in us to do it!! as i was ordering, here come james out of the car and we BOTH laughed cause we were sooo use to it!!
anyway, just a GREAT friday for us!! it is soooo close!!
Posted by Maria at 10:09 PM 1 comments
Tuesday, December 01, 2009
Alex made his RECONCILIATION!
SOOOO proud of my little guy! he made his 1st Reconciliation!! :) his first confession to a priest! that is sooooo EXCITING because he is one step closer to making his 1ST COMMUNION!!! awwww...we are so proud of him...i was SURE he would freeze when he had to actually talk to the priest but nope, he went to him, said his ACT OF CONTRITION and then all his sins etc...aww....and james and i actually went to confession too....we thought we would have to take a break from it since it had been about....10 years + since we had been!!! soooo bad! :( BUT it wasn't sooo bad...james had told me that i might have to come back and pick him up since it would take soooo long!! hahaha...
anyway, it hwas really nice to have done that as a family....
Posted by Maria at 10:03 PM 1 comments
Labels: alex
Sunday, November 29, 2009
HAPPY THANKSGIVING!!
WOW!! hard to believe that thanksgiving has come and gone and it is on to CHRISTMAS! time just seems to fly by! i look at my boys and just MARVEL that alex is now 7, matthew is now 5 and the BABY is now 2!!!! wow!
this year we had a great thanksgiving...we went to the in laws and then spent some time with the kids and their family! it has been a NICE relaxing time!!! now alex and daddy are on the boat for a little fisihng while i stay at home with the little ones!! NICE!
well, FACEBOOKING has taken over all my time with blogging...i am sad that i have not been keeping up with my blog!! :( i love having this record of my life...well, i guess AGAIN, i need to start working on it!!! AGAIN!! i think i have said this at least 3 times, right>!>! well, if you want to follow me on FACEBOOK just look me up by queengonzo at yahoo dot com....i would love to follow YOU there too!!!
ok, gotta run finish my cleaning and stuff....HAPPY THANKSGIVING YA'LL!!!
Posted by Maria at 2:33 PM 0 comments
Labels: family update
Tuesday, October 06, 2009
well...is anyone ELSE freaked out yet...
with all this FLU?!?!?! my dh and and i were talking about this that years previous, you MIGHT have heard ONE family that got the flu....NOW....it is EVERYWHERE! SO SCARY! WE are soooo worried about our family catching it...we have heard soooo many of our families that have all cought it and we just sit here and wait?! it's scary...
anyway, we are all doing GREAT, THANK YOU JESUS! it has been a good week, just hangin out and working on our family...alex is doing AMAZING in 2nd grade...matthew is doing AMAZING in kinder with his teacher....joshua is doing AMAZING being a 2 year old!! :)
today, i had a couple of friends and we went to THE MOVIES to see....FAME!! my all time FAVORITE movie (ok, the original was) so i was eager to see this one....i actually had the soundtrack of the ORIGINAL movie on a RECORD and i have the VHS tape of the movie!! :) LOVE IT!
Wednesday, September 23, 2009
today...
would have been my moms 67th BIRTHDAY!! :( she is soooo missed...she left us almost 6 years ago and she never met MATTHEW and JOSHUA....i know she would have been soooo in love with them...with ALEX, her FIRST grandchild, she SPOILED him and loved him soooo much i can only IMAGINE what she would have thought of her other 2 grandchildren!! James and i always think of her and remember her baking, cooking, going with us camping and on our trips....she LOVED to cook and we use to have SUNDAY BRUNCH at her house with all of her brothers and sisters...it was such a time of laughter and being silly with family...that is missed...i feel that when my mom passed away, a part of HER family (brothers and sisters) was missing too....we don't get together anymore as a family for brunch.....that is missed by ME and my family...i LOVED those times of being together with my family....my grandmother lived with my mom and then we would have all of her bro and sis and their families, make homemade tortillas, carne guisada, menudo, beans and any type of taco filling you could think of....all HOMEMADE!!! fun fun fun....since she passed, we don't do that anymore...sooooo sad....
but just wanted to say.....MOM, HAPPY BIRTHDAY!! MY BOYS STILL LET THEIR BALLOONS GO TO HEAVEN SO THAT YOU CAN HAVE THEM TOO!! WE LOVE YOU AND MISS YOU VERY MUCH!!!!!
Posted by Maria at 9:34 AM 0 comments
Labels: me
Tuesday, September 22, 2009
I'M BACK!!! :)
hola there.....it has been soooo long since i have blog...i am sad that i have let it go....i have been CONSUMED (VERY ADDICTED) to FACEBOOK and i seem to post EVERYTHING there....i need to reconnect with my blog cause this is my RECORD of our life....sooo, i am BACK and i am going to make a promise to myself that THIS is where i need to post what is going on in my life FIRST!!! (BUT if you want to follow me on FACEBOOK, look me up!!:)
well, since i am back, i need to update on myself....i have had a fun filled last couple of months of FINALLY getting myself checked out....i have ALWAYS had a lot of problems in my life such as GASTRO, FIBRO, etc....so, i finally got myself an appt with a GASTRO, a RHEUMOTOLOGIST, and my dr and got things rolling...i have had MRI'S, ENDOSCOPY/COLONOSCOPY, UPPER GI's...i am now on 3 medications (2 for pain, 1 for gastro) and it is pretty bad...but i am FINALLY getting myself taken care of!!!
well, MATTHEW started school last week and he is doing AMAZING!!!!! YESTERDAY, he READ for the FIRST TIME!!! nad what do i mean about that? well, the teacher showed ome on monday a sheet of paper with 3 words on it (MATTHEW, MOMMY, DADDY) AND she would flip the card over and he would then SAY dada, when MOMMY came up he would point to MEEEEEE and when MATTHEW would come up, he would point to himself!!! is that not MAAZING?!?!?!?!?!??!?!?!?! what a MIRACLE!!!
Posted by Maria at 9:05 PM 1 comments