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Matthew's MAKE-A-WISH TRIP!

Matthew's MAKE-A-WISH TRIP!
Wishes DO come true...our FAMILY in FLORIDA!! :)

Sunday, December 31, 2006

wow....can't say i am to comfy...

well, what to say except that the SEIZURES ARE BACK....it was sooooooooo nice of them to be GONE and now to have them back is just sooooo fustrating and worrisome..what to do? what to think? and they are happening almost EVERY NAP!! on

12/25 he had 1.5 min sz
12/26 he had 1.5 min sz started him on klonopin
12/28 he had 1.5 min sz """"""""""""""""""
12/30 he had TWO sz 2 min sz """""""""""""""""
12/31 he had TWO szs back to back........and this happen again while taking a nap and this time he has not been ABLE to go to sleep!!! he has had NO NAP so that means TONIGHT should be a BIG DEAL...when they are really tired, the threshold is usually lower for sz to happen soooo....i don't know WHAT to expect!

well....this is getting scary and i know when i call the dr on tues, he will either change his meds or increase SOMETHING if there is anything to increase....

soooo, we had to change our plans...we were having people over tonight for the new years but because we are really worried that matthew will have a "big" one, we had to call it off and instead they are having it at another family house...that was very disappointing for james cause the whole family would be here....so tonight will have to be an EARLY night with us going over for maybe an hour to drop off the stuff we were already having HERE and then just stay that long and come right back home...

i am so sad for my little man...he has gone thru sooooo much and to see this happen AGAIN.....just when you think all is well......

anyway, any thoughts and prayers for this little guy will ALWAYS be appreciated WHOLE HEARTEDLY from us!! you know how we SO believe in the power of prayer!! :) THANKS GUYS!

ANYWAY, HAPPY NEW YEARS!!!!! WE HOPE EVERYONE HAS A SAFE ONE!!

1 comments:

Bekki said...

((hugs)) I am SO sorry to hear the seizures are back...it just breaks my heart. :-(