NICE LONG WEEK...

YEP, we had a GREAT WEEK last week! james got a taste of how my week normally runs...he was really impressed at how MUCH goes into a NORMAL WEEK!! i think i only had one appt last week so it was an "easy" week! but he got a taste of it!! james was off for a week!! just us at home..it was very NICE!!

matthew is having about a seizure a DAY! YEP, can you believe that? yesterday he had one and he had a 2 minute one today.....man, it is getting really scary now. well, not scary but a bit nerve wracking....we never know if THIS ONE will be the one that sends us into the hospital again or is this one going to blow over and be a small one....man....

anyway, we went to the RAIN FOREST CAFE........WOWOWOWOWOWOWOW!! that was soooo awesome! we really had a great dinner there and it was nice to be in that place! 3 stories of AWESOME stuff!! BEAUTIFUL! we can't wait to go back!!


well, we are gearing up for the HEART WALK this coming weekend! wow, i can't believe this will be our 2ND heart walk! we didn't get to make the first one because matthew had just come home from the hospital! but GOD WILLING we will make all the others!!

i am sooooo hoping that our little on line support group GROWS!!!! there are sooo many chd babies out there and so many parents that probably think they are the ONLY ONES or don't know anyone and we are RIGHT THERE!!!!! GOD WILLING the word will go out!!!