doing great!

as we truck on....matthew is doing great....still junky BUT BUT not as junky as he has been...he still drops his sats when he sleeps but he is keeping them ABOVE 90 with an occational drop lower...the interesting thing is that his HEARTRATE has been dropping TONS into the 40's!!! all over the place!! kinda reaffirms that the VNS is NOT the best deal for him!!!

well, we talked to the neurologist today and he agreed that we were NOT going to do the VNS surgery RIGHT NOW....he said, WHY DO WE WANT TO TEMP FATE by possibly doing something that could STOP HIS HEART!!!! that was OK WITH ME!!! so we talked about the KETO diet...not sure if we are going to do it or not but that is what is in the works!! so far so good on these meds!!