WE ARE HOME!!

yes, THANK YOU GOD, we are HOME HOME HOME!!! :) such a GREAT thing to be! we got home yesterday about 2pm or so....it has DEFFINELTY been such a ROLLER COASTER RIDE!! and as usual, the RIDE CONTINUES!! more on this later!! DON'T FORGET TO CLICK ON FLICKR on the RIGHT SIDE for NEW PICTURES of the family!!! :)

well, matthew came home yesterday still being sick! he will continue to be on ORAL STEROIDS and yesterday (tues) will be ONE WEEK that he will be on them! and he still has ONE WEEK TO GO!! his pulmonologist came to discharge us and she said he is STILL WHEEZING!! i told her i didn't understand WHAT was happening!! he has been over a MONTH with this and he can't seem to shake it!! she said either it was a VERY BAD VIRUS he originally picked up and his lungs are still really inflamed and it will take it some time to get over it or ???????!!!!! soooooo, we just conitnue his treatments (2am, 6am, 10am, 2pm, 6pm, 10pm) and his oral steroids!! and we POUND HIM!!! yep, CPT treatments with his nebs! we see her back next week to see how he sounds!! and MATTHEW, this little boy, NEVER had a Heart rate LOWER than 60 at the hospital but at home, THE FIRST NIGHT IN, he scares the you know what out of us by going into the 40's!!!!!!! ok, is it just that he is sooooo comfy in our home or WHAT?!?! so of course now we are on HIGH ALERT for a seizure!!!!! man....