a TAPVR baby has earned her wings....

yes, my new friend with the baby with TAPVR.....i found out early this morning that the beautiful little girl had passed away....i am so sadden for this family who i had JUST started to get to know...i met them about 2 weeks ago and when i went to visit the PICU with matthew....i later took the mom a gift bag full of goodies and got to see the little girl who was BEAUTIFUL with big eyes, lots of hair and who was soooo alert....i had JUST talked to the mom on monday about the upcoming MLH party on tues 11th and how we would meet up there (her and her son would be going) and we were excited because it would be fun etc.....well, when i got there to the party, she was not there...i remember i kept looking around for her and teling my other 2 buddies that i hoped everything was ok, and wondering why she had not made it etc...i thought about her thru out the party.....after i got home and settled everyone down, it was too late to call her so instead i emailed her telling her i hoped everything was fine and that she was missed and just to call me whenever...well, last night, FOR THE FIRST TIME IN FOREVER, i actually got up off the couch, closed my compture and went to bed by 1030!! amazing!! :) when i got up this morning, i had email from a friend who had visited the family last night after the party and found out bout the baby.....i am so sad about this....if i had gone w/my instincts and called her at the party or if i had fallen asleep when i usually did, i would have known sooner....

unfortunatly, so is the life of families with CHDs....you never know....i know of a family who's little boy was doing WONDERFUL 4 years after he was born w/the same condition as matthew and just w/in the last couple of months, they are going in for a pacemaker....just never know...

sooooooo my thoughts and prayers are with this family as they deal with the pain and loss of thier tiny beautiful baby.....i pray for STRENGTH & COMFORT for them for the coming days ahead....