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Matthew's MAKE-A-WISH TRIP!

Matthew's MAKE-A-WISH TRIP!
Wishes DO come true...our FAMILY in FLORIDA!! :)

Sunday, February 08, 2009

FEBRUARY IS CONGENITAL HEART DEFECT MONTH..

i know i have really never posted anything about this, which is OOOOHHHH sooo bad of me...but as most of you know, my son MATTHEW ISAIAH was born with a CHD called TOTAL ANOMALOUS PULMONARY VENEOUS RETURN (TAPVR) and we have been SOOO BLESSED to have him in our lives....he is such a MIRACLE to us and if you have never heard the story, here is a video i made of him when he turned 4 years old...

View this montage created at One True Media
MATTHEW ISAIAH is 4!


well, there are so many organizations that are out there and some have FINALLY made it here to san antonio....there is one called MENDED LITTLE HEARTS and then another one called IT'S MY HEART...well, i just wanted to bring to your attention that the organization that i am a part of, they are selling HEART CARDS and they are pretty cool....i found this on another bloggers post and when i went to the site i just HAD to buy me some! so i thought i would pass along this to you!! here is the link...HEART CARDS VERY NICE CARDS!! i can't wait to get them in!!!

this heart mommy also had a BEAUTIFUL PRAYER that was called PRAYER FOR MY CHILD and if you would like to read it, you can find it HERE...

OK, TO everyone out there, family, friends, HEART FAMILIES, this month and EVERY month, may this find you being BLESSED with one more second with your children...i know as a heart mommy that having such SPECIAL BLESSINGS in our lives is such a JOY and i am so THANKFUL that GOD has blessed me with him....all our children are such blessings.....

i leave you with one of my FAVORITE poems/story...ENJOY...GOD BLESSINGS TO ALL...

Welcome To Holland
by Emily Perl Kingsley


I am often asked to describe the experience of raising a child with a
disability - to try to help people who have not shared that unique experience
to understand it, to imagine how it would feel. It's like this......

When you're going to have a baby, it's like planning a fabulous vacation
trip - to Italy. You buy a bunch of guide books and make your wonderful plans.
The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn
some handy phrases in Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your
bags and off you go. Several hours later, the plane lands. The stewardess
comes in and says, "Welcome to Holland."

"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm
supposed to be in Italy. All my life I've dreamed of going to Italy."

But there's been a change in the flight plan. They've landed in Holland and
there you must stay.

The important thing is that they haven't taken you to a horrible,
disgusting, filthy place, full of pestilence, famine and disease. It's just a
different
place.

So you must go out and buy new guide books. And you must learn a whole new
language. And you will meet a whole new group of people you would never have
met.

It's just a different place. It's slower-paced than Italy, less flashy than
Italy. But after you've been there for a while and you catch your breath, you
look around.... and you begin to notice that Holland has windmills....and
Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy... and they're all
bragging about what a wonderful time they had there. And for the rest of
your life, you will say "Yes, that's where I was supposed to go. That's what I
had planned."

And the pain of that will never, ever, ever, ever go away... because the
loss of that dream is a very very significant loss.

But... if you spend your life mourning the fact that you didn't get to
Italy, you may never be free to enjoy the very special, the very lovely things
...
about Holland

-------------THIS IS THE FOLLOW UP ON THAT POEM-------------------------------

CELEBRATING HOLLAND--I'M HOME

I have been in Holland for a while now. It has become home. I have had time
to catch my breath, to settle in and adjust, and to accept this different trip
than I'd planned.

I reflect back on those years when I first landed in Holland and remember
clearly my shock, my fear, my anger. In those first few years, I tried to
get back to Italy as planned, but Holland was where I was to stay. Today, I can
say how far I have come on this unexpected journey, how much I have learned
about Holland. But it has been a journey of time.

I worked hard. I bought new guidebooks. I learned a new language, and I
slowly found my way around in Holland. I met others whose plans had changed like
mine and who could share my experience. Some of these fellow travellers had been
in Holland longer than I and were seasoned guides, assisting me along the way.
Many have encouraged me and have taught me to open my eyes to the wonder and
gifts to behold in this new land. We supported one another, some have become
very special friends, and I have discovered a community of caring. Holland
isn't so bad.

I think that Holland is used to wayward travellers like me and has become a
land of hospitality, reaching out to welcome, assist, and support newcomers.
Over the years, I've wondered what life would have been like if I'd landed
in Italy as planned. Would life have been easier? Would it have been as
rewarding?W ould I have learned the important lessons I benefit from today?

Sure, this journey has been challenging and at times I would (and still do)
stomp my feet and cry out in frustration and protest. And, yes, Holland is
slower paced and less flashy that Italy, but this, too, has been an
unexpected gift. I have learned to slow down and look closer at things, with a new
appreciation for the remarkable beauty of Holland. I have discovered that it
doesn't matter where you land. What's more important is what you make of
your journey and how you see and enjoy the very special things that Holland has
to offer. I have come to love Holland and call it home.

Yes, I landed in a place I hadn't planned. Yet I am thankful, for this
destination has been richer than I could have imagined!

1 comments:

Mom 2 Andre said...

Wow! You both are real troopers! I can't believe how much you've been through since Matthew's Isaiah's birth. A true CHD survivor! He made it! I also read about TAPVR. Wow! Thank God for modern technology! How did you cope when your husband was away? Thanks for sharing those moments in photos. This was something I couldn't do; I think I was still numb from the experience from NICU to PICU to PACU in 3 months! That wasn't what a first time mom would have dreamed of. I was told that God gives these challenges to people who can handle it. So mom and dad, YOU'VE DONE IT! You're a great example of bravery and immense inner strength. This is God's work in you. Keep up the Faith in Him. Matthew Isaiah is His Child, and He will know how to take care of your little guy. Thanks again for sharing. By the way, I love the poem. I've read it a few times already and every time I gain something out of it. Many blessings to you and your family.