Wishes DO come true...our FAMILY in FLORIDA!! :)

Sunday, May 31, 2009


so today, we BAPTISED TRISTAN (our new GOD son!), JOSHUA & finished getting MATTHEW baptised....he WAS already baptised in the operating room on his day of birth but he had to be introduced to the community and annointed with the oils! it was GREAT!!!

our son JOSHUA Godparents and our family have a GREAT bond....trisha (my cousin) actually introduced james and i!! and she met HER hubby that day of the party where i met james too!! :) we were PADRINOS in thier wedding and they were our PADRINOS in our wedding....we baptised their son Tristan!! :) it was a really nice ceremony...the decon said that that was the FIRST time he had ever baptised someone that had had an EMERGENCY baptism!! he said it was REALLy specail and rare for that to happen...he said that most babies don't make it....such a MIRACLE our little guy is!

so, here are some pictures of that beautiful day!

Saturday, May 30, 2009

soooo, we had a BIRTHDAY PARTY....

for matthew!! :) i know sooooo last minute but it just couldn't be helped! we decided about 2 weeks in or less that.....but it went SOOOO WELL! we had NEVER had so little time to put it all together...we also had a BAPTISM on SUNDAY for both JOSHUA, TRISTAN (i am a GOD MOTHER NOW!!!) and MATTHEW!!! soooo we were REALLY BUSY!

anyway, we had a GREAT turn out and it was SOOOO NICE to see so many of our friends and family there!! we had about 60 people there...just PERFECT! sooo, i just wanted to share with you some pictures of this day!!





soooo happy it turned out WONDERFUL! the weather was just BEAUTIFUL and the wind was blowing just soo....just enough to keep it cool and NO MOSQUITOS!! :)

Thursday, May 21, 2009

went out to dinner for MATTHEW'S BIRTHDAY!

just had to share some pictures with ya! if you can't tell, i FINALLY got my program working to download my pics from my camera (thanks BIL!)...sooo, we went and took matthew out to eat at GOLDEN CORRAL because there is PLENTY of yummy stuff for him to eat there and he LOVES to eat there!! my MIL and FIL and our family went ther and it was just sooo nice to watch him eat and such....towards the end of the dinner, we had the wait staff come and SING for him HAPPY BIRTHDAY and it got me going...i did not THINK that would happen but there i was, CRYING...and i mean REALLY crying! i don't was just so AMAZING to watch him be sooo happy and soo excited as we all sang to him...he was just sooo HAPPY...again, he is FIVE YEARS OLD!!! i remember it well when they didn't expect him to live past his first DAY!!! THANK YOU GOD FOR EVERY SECOND OF MY MATTHEW'S LIFE!!!! it was so neat because a fellow diner gave him $5 and he got soooo excited!!

sooo, here are some pictures of his DAY!!


i just had post again.....this morning, when i went in cause i saw that matthew was stirring....i went in and my BEAUTIFUL, AMAZING, SMART, AND MIRACLE OF A BOY was saying something....GUESS WHAT HE WAS SAYING?!?!?!? my beautiful boy was saying..."FIVE, FIVE, FIVE..." OVER AND OVER AND OVER and he had his hand up SHOWING ME HE WAS FIVE!!!!!! he was facing the wall and he was looking at his hand and just saying that with a BIG SMILE over and over again!! :) he turned around to me and held up his hand and kept saying 'FIVE....FIVE!!" just soooooooo amazing! he is so HAPPY that today is his birthday....yesterday, when we told him it was his birthday today he started to JUMP up and down and get sooo happy!!



ooooooohhhhhhh mmmmmyyyyyy GOOODDDNNNEEESS!!! our baby boy is FIVE YEARS OLD!!! wow, THANK YOU GOD for EVERY second of his beautiful life!! we have been so blessed to have him in our words can describe the LOVE we feel for this special little boy!! FIVE LONG YEARS AGO, the drs told us when he was about an HOUR old that "we don't think he will make the transport (to the other hospital or surgery)" and they also told us >"i am sorry but your son will not make it thru the night"......BUT BUT BUT....they also told us, "WE MIGHT HAVE A MIRACLE ON OUR HANDS" and one of the MOST important statment made to us was "THERE IS SOMEONE MUCH HIGHER THAN ME (the cardiothorasic surgeon) AND THE DRS WORKING HERE" ACKNOWLEDGEMENT that OUR GOD was at WORK on this little MIRACLE BABY BOY!! OUR PRAYERS were being ANSWERED!!! to see him now, MOST don't know the STRUGGLES this little boy has been thru....until you realize that he does not talk, and has MANY MANY scars from surgeries and that he does not walk or don't SEE any of that because he BEAUTIFUL BLINDING SMILE and GEORGEOUS HUGE EYES with those CRAZY eyelashes captivate you!! he has never met a stranger (unless he is a DOCTOR/NURSE) that he didn't LOVE!!! he is such a happy boy all the time!! ALL THE TIME!!! we are so amazed that he is OURS!!!

FIVE YEARS OLD....FIVE BEAUTIFUL AMAZING YEARS with him!!! he is the most amazing CHILD ever!! i really mean it! he is ALWAYS smiling and wanting to sit in your lap, give you hugs and kisses and wanting to READ!! he LOVES books!!! he LOVES flipping thru the pages of a magazing to look at stuf...he loves his MOVIES and he LOVES to talk on his COMMUNICATOR! he loves to be where ever we are...he enjoys sitting in his feeding chair and being at the table with us...he loves to chew on his food and loves to eat whatever we are eating...he is so AWARE of EVERYTHING now...just shows how much more he has grown...he is always just so happy....he loves his DADDY and LOVES to be with him!! he LOVES his brothers....his BIG BROTHER ALEX is his idol! he loves to see what he is doing and try to do it too! his BABY BROTHER JOSHUA...he LOVES to torment him! he wants EVERYTHING he is so AWESOME to see him develope MENTALLY because that means he understands EVERYTHING!!



if you want to read his MIRACLE HERE..

you can also see his 4 year MONTAGE HERE...

i will post his NEW montage SOON!!!

Wednesday, May 20, 2009

JOSHUA has a EEG today....

well, today, joshua has an EEG today....and to make that just a BIT is SLEEP DEPRIVED ONE!! YIKES! so last night, i held him back from sleep for 2 hours PAST his sleep time and then woke him up 2 hours BEFORE he normally woke up!!! and let me tell you, he did NOT want to wake up!!!! he was soooo cute, he was rolling around the bed moaning because i had the lights on and trying to open his eyes! CUTE! he even laid with his head over the side of the bed....just pitifully looking at me!

ok, big question i have been asked is WHY are you doing this?! well, for a while now, some nights when he falls asleep, he starts to TWITCH/spasm pretty hard....and it goes on for about 5 mins or so....sometimes it is so hard that i get STARTLED thinking he is going to fall....he also has had tons of night where he WAKES UP screaming for no reason and sometimes he is can't be consoled....and then the reason is that with MATTHEW having SLEEP SEIZURES, it is just a precaution for us and something to EASE my piece of mind!! i know in my heart that all is well....

anyway, he also got bloodwork done on monday and he was AMAZING!! they had to take out 4 vials of BLOOD!!! and thru it all he was just amazing!!

soooo, i will post when i get the results....any thoughts or prayers would be appreciated.....

Saturday, May 16, 2009


THANK YOU sooooo much!! this organization was the one that accepted Matthew as a WISH KID....we were soooooo thrilled!!!

soooo, here is my post on this WONDERFUL ORGANIZATION!!! i previously posted about GIVE KIDS THE WORLD VILLAGE and now this is about the WONDERFUL ORGANIZATION that BROUGHT us TO GKTW!!! MAKE A WISH is an amazing organization that grants WISHES to children with life threatening and terminally ill children.....unfortunatly my child falls into this category....but because he did, my beautiful amazing SON was BLESSED with a wish to DISNEY WORLD FLORIDA!!!! a once in a lifetime WISH!! and all i can say is BECAUSE of this WONDERFUL ORGINZATION it happened!!

first let me tell you that i will work HARD to try to bring awarness to this is because of THEM that i met so many OTHER families there at GKTW that had been granted wishes....other SPECIAL kiddos and their families that have been thru what my son has gone thru or WORST!! just amazing...they grant these kids their WISH....something that is so special to them and then make them feel like they are the most SPECIAL KIDS OUT THERE!! this foundation goes out of it's way to make these kids know that they are LOVED and that they are HONORED to be with these kiddos and their family....they don't just hand you the wish and are, they make you feel like they are BLESSED to be in your childs presence!!! and it is all about the child!! this SPECIAL child that has been THRU SOOOO MUCH in their little lives.....they are the REASON that they are here!!! what an AMAZING organziation!!

well, let me let you in on some ways that you might be able to HELP the MAKE A WISH FOUNDATION...

you can DONATE directly TO our local MAKE A WISH FOUNDATION thru this LINK they have several WAYS you can make a donation! you can even donate your TIME to help them by VOLUNTEERING!! some day, GOD WILLING, i would love to be a volunteer there!

you can buy something from their STORE!!! it is called the MAKE A WISH MARKETPLACE!! you can purchase some items knowing that it goes towards the WISHES of these SPECIAL KIDS!!


there is an ONGOING fundraising going on for MAW....if you GO to any

April 30–May 27, 2009

Maggiano’s Little Italy locations across the country will encourage their guests to Eat-A-Dish for Make-A-Wish to help raise funds for the Make-A-Wish Foundation®.

The promotion includes donations through the purchase of feature menu items, gift card sales and the purchase of wish stars.

Over the past five years, Maggiano’s has raised more than $700,000 through this promotion! Please visit your nearest Maggiano’s to help support your local Make-A-Wish chapter

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THEN there is the BETTY CROCKER SIRRING UP WISHES and you can go vote EVERY DAY THRU THE MONTH OF MAY for a certain MAKE A WISH location nearest you and they are granting 12 WISHES IN 12 WEEKS!! to sign up it is FREE and you get some GREAT BENEFITS such as FREE news letters and recepices!! GREAT stuff! i am going to VOTE every WEEK for our LOCAL MAW!! help them make theses SPECIAL KIDDOS WISHES COME TRUE!!

i am going to also try and update and let everyone know when there is a new FUNDRAISNING EFFORT by MAKE A WISH!!!

take care and THANK YOU MAKE A WISH for my son's WISH YOU GRANTED!!! :)


Monday, May 11, 2009

Matthew has CEREBRAL PALSEY....(CP) i KNOW this....but i FORGET THIS!!! today, i had an ARDS meeting at his school for his homebound and to talk to everyone about our future goals and what he has done this school was pretty cool to hear how much he has PROGRESSED!! i love it! soooo, i was talking to one of the therapist and we were talking about what we wanted him to do....and there is another family that i am REALLY close to and what STARTLED me was that she said, "you can't compare matthew to ANYONE ELSE!! he has CP and that makes LOTS of things HARD FOR HIM!!" and that was like a WOW moment....he has been diagnosed since he was a year old....and REALLY, i just was SHOCKED when she REMINDED ME that he HAS CP!!! i told her, that when she said that, it just SHOCKED ME...she told me that it was because we are such wonderful parents that we treat him JUST like the other two so we don't SEE his DISABLITLY!!! and that is it EXACTLY....i FORGET that he has CP...i really do!! with that other little boy who is also special needs, he just started to walk (they are a month apart) and i was soooo excited for HIM....and then i thought to myself...ok matthew, LET'S GO!! YOU CAN DO IT!!....FORGETTING that it is HARDER for him to do THAT and many OTHER THINGS....i don't SEE him with CP.....

anyway, such a SHOCKER but a WAKE UP CALL that he DOES need a lot of work and he is NOT LIKE OTHER KIDDOS!!! i love my son soooooooo much that i dont' SEE his disablities!! such a special little boy....

Sunday, May 10, 2009


JUST coming on really quick to wish ALL THE MOMMIES OUT THERE A VERY HAPPY MOTHERS DAY!!!!

my family is my JOY and i always feel sooooo BLESSED to have them in my life!!! i know MANY ladies out there that have wanted children sooooo badley but for whatever reason, they were never able to have children..... we've been blessed 3 times in our life and 2 angel babies....THANK YOU GOD!!

my beautiful boys gave me a WONDERFUL WEEKEND....we did a WHOLE bunch of stuff together as a family...and my boys bought me some BOOKS!!! and then on saturday, after a day of finishing our GARDEN that i have wanted to do for a long time (daddy and the boys did that for me), james and i were able to go take in a MOVIE for the first time in YEARS by ourselves!!! we watched 'X-MEN...WOLVERINE" which i HIGHLY recommend if you like that series!! anyway, it was really nice to just watch and adult movie...but we missed our boys!! our oldest neice watched the boys for us....then on mothers day, gave me a dozen roses and some of my FAVORITE chocolate!! after a great day at church, we had breakfast at our home (barbaco and tamales YUMMY!!) we went to my in laws for a BBQ and just had a great time together!! it is so awesome to see the kids with their grandparents....the love is MUTUAL!!

well, all my prayers to all the mommies out there in the world....BE STRONG, SHOW LOVE, AND KNOW THAT YOUR ARE BLESSED!!!

Thursday, May 07, 2009

Matthew is going to get NEW WHEELS!!! :)

hello there!!! we are just sooooo excited that MATTHEW will be getting his NEW SET OF WHEELS in a couple of weeks!!! remember, at disney world, he BROKE his stroller/wheelchair and now it is time to move on to a 'REAL' wheelchair....we are going to be getting the

KIDS ROCK WHEELCHAIR by KIDSUP!!! here is a PICTURE of what he is getting EXACTLY!!

except we are going with the GREEN instead of the orange.....we are soooo excited because it is going to fit his needs exactly! why? because it actually ROCKS and is MEANT for him to extend himself like he does when he gets excited!!! that is AMAZING!! it is not a STATIC moves with him if he gets excited and jumps around, we can still push him OR he can self propel himself!! :) i LOVE IT!! AND we can tilt him when he needs to sleep or relax!! soooo AWESOME!! it has been almost 4 years since he had a chair....the other one was falling APART on us!!

here is a VIDEO on what this wheelchair DOES!! VERY INTERESTING!!

i will let ya'll know when it comes in!! WOOOOOOOOOOO HOOOOOOOOOO!!!

Friday, May 01, 2009

MATTHEW out of hospital....the SCARE of my life...

hola everyone! i hope everyone is doing great....well, after 14 months of no seizures and 18 months without those BIG seizures, matthew had another sz on THURSDAY out of the blue.......and BLUE is the key word is what happened...

well, matthew was taking a nap and the nurse had been watching....about 30 mins in, i checked on him to ask how his heartrate had recently been in the 50's and i was just concerned with what it would be...she said it was 89 and that he had woken up...i told her just to let him chill out in his crib for a bit to see if he would go back to sleep....well, i went back in about 15 mins to check on him and he was still awake so i just walked in and said "let's go ahead and take him out, he is not going to back to sleep" so i raised his bed and i was just talking to him and he was just laying there actually looking steadily at the nurse....i tried to pull his gaze away and he would but then come right i asked her if he had been staring when he woke up or if he had had a SZ...she said that no, he had been acting fine and had been smiling and such before i walked in to get him....i just felt LIKE SOMETHING was not RIGHT!!! it was really bugging me but i just KNEW that something didn't feel i kept bugging him and trying to get him to interact with us...he WAS but just not very well...kinda lethargic like...sooo, i just kept on him...i turned on his DVD player and put on his FAVORITE show which he USUALLY goes crazy for and just gave it a quick stare and that was it....i told the nurse SOMETHING was up...i took his temperature, checked his shirt to make sure he had had a sz before (he drools ALOT when he does) AND just overall checked his limbs....we changed his G-TUBE and i was just messing with him and giving lots of love....i was concernec enough that i didn't want to leave him like i usually do to go finish up alex's then i said, 'i am going to cut your nails" something he HATES to i get my clippers and he is just looking at me...then i start to clip and i got to his second nail, i SAW HIM GET BLUE AROUND THE MOUTH AND FOREHEAD and i told the nurse, ' did you see that? pull on his pulse ox QUICK" AND she didn't know what was happening and then he did it again and i told her "get me the oxygen NOW" he is not breathing and he is BLUE!!!!" and as she did it, i HONESTLY with ALL MY HEART thought that he was having a HEART ATTACK...he had NEVER had this happen to him, turning blue like that i didn't know WHAT WAS GOING ON!! i had the HORRIBLE THOUGHT that i was going to have to do CPR on him because i thought he was DYING!!!! it was probably one of the SCARIEST time in my life....i had thoughts about THANK GOD WE DID MAKE -A-WISH....anyway, i started to blow on matthew trying to get him to breath and he was just LIFELESS and BLUE so, i got him down and kept trying to stimulate him while HURRYING the NURSE to QUICKLY get the oxygen...i called to my WONDERFUL SON, alex and told him to get me the phone because i had to call 911....he was sooo awesome!! i called 911 and i told him i did NOT know what was going on only that my son had stopped breathing and was blue and because YES had sz disorder but this was NOTHING like i had ever experienced.....he dropped his sats to was soooooo scary!!! EMS and FIRE got there within 5 mins and i administered his DIASTAT because he had finally started to have a sz the "normal' way...he was just lifeless....i told the parametics that they needed to bag him because i was sure his CO2 levels were high cause he was not effectivly breathing even though his O2 sats were 100%....they bearly heard any breath off we went to ambulance and they started to bag him and we went CODE 3 to the hospital...the ended up INTUBATING him and they gave him 4 doses of ADIVAN (anti convulant) cause he was still szing and they did a cat scan and blood work....we ended up in PICU 7....later that evening, he SELF EXTUBATED himself :) everyone remembers when he did it both times as a BABY!!! :)

well, THANK YOU GOD, he is doing well....we came home today after less than 24 hours there....we increased one of his sz meds and as of RIGHT NOW he has been awake for 22 HOURS because he can't sleep!! i found out it is a side effect of all the MEDS he had and it will wear off soon...he is trying soooo hard to sleep but he just can't..he keeps crying and being upset...

well, THANK YOU ALL for the thoughts and prayers....we are now AGAIN on HIGH ALERT... we got REAL COMFY with him not having ANYTHING in over a year....i am very happy it didn't happen in FLORIDA and of course, matthew had to pick the PERFECT time when no one should be NEAR the hospital with all this FLU EPI!!

ANYWAY, please just pray that he SLEEPS COMFY tonight and these sz go away AGAIN!!