Wishes DO come true...our FAMILY in FLORIDA!! :)

Wednesday, May 21, 2014



MAY 21, 2004


Matthew Isaiah is 10 YEARS OLD, THANK YOU GOD! Wow, what an amazing and wonderful life we have had with matthew in our life. GOD IS SO GOOD! HE IS IN DOUBLE DIDGITS!!! wowowow, that is just such an INCREDIBLE AMAZING WONDERFUL MIRACLE OF GOD that little boy is! I sit here just in amazment that my beautiful boy is growing and getting bigger and stronger and just LIVING day by day. Such a MIRACLE he is, THANK YOU GOD!

My thoughts are never far away from what a miracle he is and where he has come from and where he is now. James and I are always marveling at what he is doing or things he does on a daily basis. He is such a CUTE kid and such a SMARTY!! Hard to believe that when he was born, they gave him NO real chance that he would live...that after he was born blue, needing an open heart surgery IMMEDIATELY, they didn't think he would make the trip from one hospital to another....that once he got there, that he would survive the open heart operation that he had when he was ONLY 8 HOURS OLD!! but he did, thank you JESUS! He was kept on an ECMO maching ( for his first 5 days because they could not take him off of the machines after his surgery, so they left him on this hoping that his body would recover and be able to take over the job of his lungs and 5 days (may 26, 2004), they told us they had to take him off this machine and either he was going to LIVE or DIE...and after doing so, we were told in the waiting room, that he had about 1% chance of survival and to pray for a miracle because that was the ONLY way that he would survive....going in to see our MIRACLE without that big ECMO machine and the room being so silent...the wonderful staff at METHODIST CHILDRENS hospital who took over and got us a CAKE and DECORATIONS for his 'birthday' party that we wanted to give him (since we didn't know if we would have anymore), and having all our family and friends there with us but most of all FINALLY BEING ABLE TO HOLD that precious baby in our arms for the first time!! what an JOY it was to hold him in our arms and FINALLY be able to carry him....thinking back, that hospital was just amazing to allow us to have this 'party' for him and allowing us to have so many of our friends and family there to celebrate his life!!! & at a PICU! I soooo love that hospital!!! They had a ceremony for us and the wonderful doctor read a beautiful poem for him, they did some prints of hands and feets, cut a lock of his hair for us, made a cast of his hands and feet, gave us a grief blanket and just supported us thru this amazing time in our life....and all the nurses came over and sang HAPPY BIRTHDAY to him too!! such a SPECIAL place that is!!!

After holding our beautiful baby boy until 2am, we finally put him down and fell asleep next to his bed only to wake up at 7am SCARED AND WORRIED thinking that we had missed his passing....only to find out he had his eyes open, grabing our fingers and wiggling his toes, all to the AMAZEMENT of the doctors and staff!!! HE MADE IT and is a MIRACLE to all the doctors and nurses that have known him especially those that knew all the personal, medical and private parts of his life while he as there in the hospital during those first days thru the 98 days he stayed in the PICU. They TRULY know what a miracle he is and what he went thru and what an almost IMPOSSIBILITY it was that he survived thru it all....and as I ALWAYS say, it is ONLY thru GOD that our son is HERE today!!! if you want to read about his miracle story, here is alink to the BLOG post: and one of his YOUTUBE videos:

soooo, now on to the amazing news of the day....MATTHEW ISAIAH IS 10 YEARS OLD!!! double digits!! wooohooo!!! This little guy has been thru it all and ALWAYS with a smile!!! He is eating orally now, but it is not consistant, but we will TAKE IT! He only gets 3 cans of his PEPTIMUM JR formula a day and that is thru a bolus....and he has been able to maintain his weight and keep growing. He is now 55 lbs and 43”...To think this was the baby boy that would not 'make it thru the night'....THANK YOU JESUS!! He is really vocal, although still non verbal, but he CAN get his meaning and wants across for the most part. I think A LOT of his fustration has to do with the lack of being able to communicate...he does have a communication device but it is really big and HEAVY...but GOD WILLING next year he will get the new and improved device on an PAD platform which will be soooo much lighter for him! :) He is learning to use his KAYE walker. He walks with assistance everywhere he goes and he helps with his transfer and such too. He is soooo SMART! He is doing amazing with his teacher and has excelled and made all his goals! He LOVES playing WII resort and playing the SWORD FIGHTING game. He also enjoys WII SPORTS baseball and bowling game. If he could, he could play ALL DAY LONG! On top of that, he LOVES his iphone and enjoys watching YOUTUBE VIDEO's all day....just different stuff like, people playing WII, seasame street, and he especially loves any video's that are of HIM or our family! He can watch those over and over! ESPECIALLY if dad is either talking or in the picture!! and he LOVES playing BASEBALL!! He recently was in a special team called THE MIRACLE LEAGUE OF SA and he was on the LEIJA DODGERS team!! he was soooo PROUD when he hit the baseball and dad and him ran around the bases!!! he LOVED playing on his team!! just like his brothers! Wow, the things he can do! He loves being right in the middle of everything and just BEING there!! He loves his family!! and now that we bought the PONTOON BOAT, well, he LOVES being on the water and then jumping in the water and swimming around!! :) but to get him out is a DIFFERENT story!! boy, that child does NOT want to get back in the boat!!!!!! ;)

LIFE with matthew is just so amazing and wonderful!! THANK YOU GOD, this year has been a HEALTHY year!! hard to believe but we are ever so THANKFUL that he has really only had about 3 illness the WHOLE YEAR!! amazing! I keep waiting for it but nope! LOVE it! And I know he has enjoyed the stress free year without having to have the drama of having to do drs appts, meds, suctions, treatments, oxygen etc! AGAIN, THANK YOU JESUS!! I won't lie by saying I am not 'waiting' for it because I am!! just always worry when it will hit!!! :) as for the other medical issue, well, it's been over 36 months since his last BIG seizure!! and since aug 2010, he has had only 2 seizures!! woohooo!! thank you GOD for that!!!!!! but we are ever vigilant, never taking it for granted that he could get sick or have a seizure at ANY moment! But that has been our life for the last 10 years....knowing that every SECOND of his life is a precious miracle and that because of all he has gone thru, we know that ANYTHING can happen!! but we are sooooo GREATFUL for the last 10 years we have had with our MATTHEW!!! i made a movie for MATTHEW with pictures of his last 10 is the link to it: ***UPLOADING TO YOUTUBE AND WILL POST SOON!****

SOOOO, HAPPY BIRTHDAY, MIRACLE MATTHEW ISAIAH!!! with your birth you have brought MORE life, love and happiness to our home and we thank GOD everyday for the true BLESSING you are in our lives!!! WE LOVE YOU AND ARE SOOOOO PROUD OF YOU!!!! PLEASE GOD, GIVE US MANY MANY MANY TO INFINITY MORE YEARS WITH MATTHEW!!!