well, what to say except that the SEIZURES ARE BACK....it was sooooooooo nice of them to be GONE and now to have them back is just sooooo fustrating and worrisome..what to do? what to think? and they are happening almost EVERY NAP!! on
12/25 he had 1.5 min sz
12/26 he had 1.5 min sz started him on klonopin
12/28 he had 1.5 min sz """"""""""""""""""
12/30 he had TWO sz 2 min sz """""""""""""""""
12/31 he had TWO szs back to back........and this happen again while taking a nap and this time he has not been ABLE to go to sleep!!! he has had NO NAP so that means TONIGHT should be a BIG DEAL...when they are really tired, the threshold is usually lower for sz to happen soooo....i don't know WHAT to expect!
well....this is getting scary and i know when i call the dr on tues, he will either change his meds or increase SOMETHING if there is anything to increase....
soooo, we had to change our plans...we were having people over tonight for the new years but because we are really worried that matthew will have a "big" one, we had to call it off and instead they are having it at another family house...that was very disappointing for james cause the whole family would be here....so tonight will have to be an EARLY night with us going over for maybe an hour to drop off the stuff we were already having HERE and then just stay that long and come right back home...
i am so sad for my little man...he has gone thru sooooo much and to see this happen AGAIN.....just when you think all is well......
anyway, any thoughts and prayers for this little guy will ALWAYS be appreciated WHOLE HEARTEDLY from us!! you know how we SO believe in the power of prayer!! :) THANKS GUYS!
ANYWAY, HAPPY NEW YEARS!!!!! WE HOPE EVERYONE HAS A SAFE ONE!!
Sunday, December 31, 2006
well, what to say except that the SEIZURES ARE BACK....it was sooooooooo nice of them to be GONE and now to have them back is just sooooo fustrating and worrisome..what to do? what to think? and they are happening almost EVERY NAP!! on
Tuesday, December 26, 2006
well, i sure hope everyone had a GREAT holiday!!! as for us, well, we actually had a WONDERFUL CHRISTMAS DAY!!! :) sooooo happy! but there was some drama yesterday while matthew took his nap...james and i acutally talked about the possibility of him having a seizure while we were at grandmas....i was bummed because should he have had it we would have most likely ended up at WHMC and i was not to thrilled with that possibility....don't get me wrong it is a GREAT hospital but they don't KNOW matthew....anyway, sunday night his pulse dropped into the 40's and james let me know this...well, when he finally went down for a nap, i was determined to watch him and sure enough, within him going down about 10 mins, BAM!! he started to have a facial seizure and it was BAD!!! he also turned a nice shade of blue...and where was all my stuff (pulse ox & oxygen?!) not near me!! so yelled to james to get me the stuff and i was trying desperately to wake him up and couldn't....i was REALLY REALLY REALLY sure that we were headed to the hospital...well, i asked all the kids (my neices & nephews who were standing by the door looking scared, poor kiddos) i asked them to come over and talk to matthew, and they DID!!! MADE ME SOOOO PROUD! they came over and got on the bed and all of them started to talk to him and poke at him until he got mad, woke up and started to cry and stop having a seizure and went back to sleep!!! by this time, james came in with the pulse ox & oxygen but he was back to sleep and after checking his o2 sats, they were just fine...soooooo, that was our excitment for the day!! it sure did freak me OUT!!!
and then today, tuesday, he did it AGAIN!! i finally had to call his neuro and ask him should i just use the diastat when he starts havng one and he said no, to give him one of his KLONOPIN tablets after a "cluster' seizure and just see what he does...if he has ANOTHER seizure, then i am to administer the diastat....well, i gave him his KLONOPIN and that seem to do it....
sooooo, we are BACK ON THAT ROLLER COASTER....we had gotten a break there for a bit but it seems that was not to be for long!! just enough to get our break and a deep breath and get right back on......i LOVED MY BREAK!!! :) sure wish it had been a bit longer though....
Sunday, December 24, 2006
Hello Family & Friends!!
ho-ho-ho!!! MMMEEERRRRYYYY CHRISTMAS!!! wowowowowow...what a WONDERFUL year we have had....the good, the bad....we are HERE and we are ALIVE!! isn't that all that matters?!
MERRY CHRISTMAS & HAPPY NEW YEARS!!! We wanted to wish everyone a safe and happy holiday!!
Wow…can you believe that 2006 is almost OVER?! Where has the time gone? I am just in AWE of all that has happened to our family this year….sooooooo much! Another year of being BLESSED and another year with our family of 4…that is ALWAYS a blessing! Never more so then after it could of NOT been….
Anyway, our little family is doing GREAT! We have been enjoying our holidays as a family, buying & wrapping and looking for that special gift…..YEA IT IS OVER!! Gotta love that!
Alex is doing great…he is doing soooooo well in his homeschooling. I am soooo proud of him! I can’t believe the things HE KNOWS! James and I just look at each other when he spouts off something or he starts playing a new game and figures it out QUICK with no instructions from us (and trust me, we are NO HELP since we usually have no clue what that game is!) He just amazes us! And THANK YOU GOD, he has been healthy! We all caught a tummy bug a couple of weeks ago but he got over it pretty quick but MAN it was soooo scary to see him so sick! And as ALWAYS he is such a GREAT big brother…always taking care of brother and making sure we know when matthew “has poop”…he is officially our poop monitor…he can tell across the room if matthew has done his business!! We just laugh! I can’t wait to see his eyes when he sees what Santa has brought him!!
Now onto matthew, well he has had a rough year…although he has grown and developed and this year at 20 months old, he learned to SIT on his own and then at 2 years old, he learned to go from on his back to sit too!! and gotten bigger, he also had TONS OF SEIZURES and all have been VERY SCARY and very bad. I felt so bad for him because he looked so helpless when he has those seizures…so NOT like our boy….and he has not let us relax our guard either….this past weekend was an VERY good example of that….james and I had just gotten too comfy when BAMMMM another BIG seizure…and again, we went by EMS and he almost was placed on a vent and he was BAGGED the whole way…wowowowow….i can’t tell you how crazy it has been and how just on edge it puts us…we just worry because his go on for a LONG TIME….but THANK YOU GOD, he comes out of them and he keeps on….smiling and happy….this last time, he is EATING AGAIN!! THANK YOU LORD! It is just soooo awesome to see him eat and and drink again! And eating WELL TOO! happy happy! He also now has nursing care that we are SO happy about!!! It has taken a bit of an adjustment but I think we are getting it together….slowly but surely! Now just to keep healthy and developing that is the key…
James is doing so great too! He does his work so well and is always getting so many compliments on how well he does! I am so proud of him. I know that there is always the possibility of him being deployed so I just pray that WHEN it happens it will be further down the line when the boys are a bit older! But, only GOD knows when…
As for me, well, I am doing great. Just enjoying being a wife and mommy. I always feel and know I am so blessed with all that is going on in my life…I just feel like this is the PERFECT life for me! I look at my husband and feel blessed and so happy. I look at my children and see perfection and feel so much love, happiness and JOY that those precious kiddos are MINE!! Wowowowow….what a feeling!! THANK YOU GOD for all the blessings in my life!!
So, we hope that everyone has a WONDERFUL and SAFE holiday…..that everyone feels SOOOOOO BLESSED that they are ALIVE and have family & friends around them.
Many thoughts and prayers to all that are in need this Holiday season and always….many of our fellow special needs kiddos are either too sick to enjoy the holidays, are awaiting surgeries or in the hospital not feeling well, so our thought and prayers go out to them…we were there at the hospital during Matthew FIRST Christmas for 21 days so we know and we will pray….
please drop us an email or leave a comment here & let us know how you are doing!
GOD BLESS and MERRY CHRISTMAS & HAPPY NEW YEAR!!
James, Maria, Alex & Matthew
THE BOYS WITH SANTA...
MATTHEW WITH HIS REINDEER HAT! :)
THE BOYS DOING SOME GROCERY SHOPPING (only the 2nd time for matthew in a shopping cart)
IAN, MATTHEW & MARISSA in front of a house at the WINDCREST christmas lights...matthew could NOT stop laughing when james put him in there!! :)
ALL MY BOYS WITH SANTA AT THE HOSPITAL!!
Wednesday, December 20, 2006
today we had a GREAT DAY because we had a CHRISTMAS PARTY to go to that was given by CHRISTUS (our nursing service)...VERY NICE!! it was held at the DOUBLE TREE HOTEL near the airport and it was very nice to see a room full of kiddos that were normal like matthew!! it was GREAT!!! to see so many kiddos getting g-tube fed, on pumps and oxygen JUST LIKE MATTHEW was just moving....
everything was laid out really nice and the kids got to see a clown and get a balloon sword and then they of course got to eat some YUMMY food....then the big event happen and SANTA AND MS CLAUS came over for a visit...!!!! the place was HOPING with everyone sooooo excited!! and every boy and girl got to visit with santa and get a gift too!!! VERY NICE!!!
they also came over that day and dropped off some gifts for the boys from them!! now i knew they were going to get the boys a gift because the case manager had asked us what the boys liked but OMG, they brought GIFTS!!! LOADS AND LOADS OF THEM!!! it was soooooo AWESOME!!! i am so excited for the boys and can't wait for them to open them!!!!
anyway, it was really nice and i feel SOOOOO BLESSED.............here are some pics of the boys at the party....
AT THE PARTY....
WITH MS CLAUS...
VISIT WITH THE MR & MS!!
THE GIFTS SANTA BROUGHT THEM AT THE PARTY...
THE GIFTS THEY SENT TO OUR HOME!!!
Tuesday, December 19, 2006
yep, it has happened AGAIN!!! matthew has had another seizure...it started LAST weekend while we were at ft hood and he had a small one on sunday...well, this weekend on SAT, 12/16/06, matthew had a small seizure that night...it lasted about 30 sec THAT WE SAW....but the rest of the night, other than refluxing/throwing up, he did well....well on sat, during nap..he had a seizure (facial) but i was able to get him out of it...it lasted about 30 sec or so...then after he went back to sleep, it happen AGAIN..each time, with a DIFFERENT way of happening...well, again, i was able to get him out of it....poor kid!! well, after he went BACK to sleep, he had been sleeping for about 20 mins of so and i had gone downstairs to finished getting things ready for a Christmas party we were going to when i look at the monitor and notice that his eyes are WIDE OPEN...i ran up the stairs and there he was AGAIN having a seizure...this time, i just went IMMEDIATELY to his DIASTAT (emergency seizure meds) and gave it to him...james runs in and i told him what was happening and he started to call 911....they got there and he was still seizing....he was TOTALLY unresponsive with eye WIDE OPEN...the fire department had been there before so they knew matthew...well, after the ambulance got there and they took him to the truck, i asked that the paramedics please check his CO2 leves because they are always WAY UP even though his o2 sats are fine and sure enough, they did and they started to BAG HIM because his CO2 levels were WAY HIGH!! (normal CO2 levels are 18-45?) and matthews were 70+!!!! he was breathing but not EFFECTIVELY...so they bagged him and OFF we went with lights and sirens to the hospital....they were still bagging him and when we got to the hospital, they continued to bag him...the dr walked in and he remembered matthew and after reading the levels from blood, he said, "so, should we intubate him?"...all the nurses said, "yes" and then a hear a BEAUTIFUL voice, (RT J who has known him since birth) say, as he sits there bagging him "no, i think we should put him on BIPAP machine." i almost kissed him and i said, "thank you, j!! i don't think he needs it either!!!" soooo, the dr heard him and agreed to do that and they did, they put him on the bipap and he stayed on it for 2 hours and then as he was coming around, MATTHEW decided he didn[t want it anymore!! :) anyway, we were transfered up to PIMC for the night and he did REALLY GREAT....we came home yesterday after almost 24 hours there....i told matthew, 'YOU GET IT OUT OF YOUR SYSTEM BECAUSE THIS IS IT UNTIL AFTER THE NEW YEARS!!" :) he is doing great....i think, and so do the drs, that it was because of his tummy virus he has had since tuesday...it probably dehydrated him...so, they only increased one of his night meds by .5ml!! very happy about that!! he has been doing SOOOOO GREAT on his dosage i didn't want to them to REALLY mess with it!!!
anyway, we are home and he is doing fine....we got a bit tooo comfy with no seizures since 10/1/06 that it really took us by surprise!! it has been REALLY NICE AND QUIET....i guess we needed a bit of our DRAMA to happen ONE MORE TIME before the year ends!!! :) you know matthew!!! sooo, all i can do is pray and continue to just keep watch over him!!
MATTHEW AFTER OUR SCARE...
MATTHEW IN HIS BIG BOY WHEELCHAIR ALL ON HIS OWN...
Monday, December 11, 2006
well....on friday we decided to go meet james in FORT HOOD for the weekend!!! WOOOHOOO! we were all sooooo happy an excited! it is funny that last year, james was also here in fort hood during the holidays and that was how we got to go to the NATURE IN LIGHTS here in fort hood (the five mile stretch of lake that has MILLIONS of christmas light displays)...we took quantum (our dog) to the vet for his little vacation! i know he was NOT HAPPY but i just could not leave him at the house outside for 4 days in this cold!!! so we boarded him, he got his shots & a bath & dip! he probably thought he was in HELL but it had to be done! the kids and i left about 3pm and got stuck in AUSTIN TRAFFIC!! OMG, if you have ever gotten stuck in that...amazing!! it took me about an HOUR to get out of austin!!!!!!! anyway, kids did GREAT during the trip..no side stop, just drove straight thru! they sat and watched their movie and just were so excited that we were going to see daddy soon! we actually got at the hotel about 2 minutes BEFORE james got off work and got there (7pm)!! GREAT! soooooo last night we WENT TO THE LIGHTS!! wowowow...just as nice as last year!! unfortunatly it seemed that EVERYONE ELSE decided to be there too! so we did not make it to see santa at the cabin!! :( but that was ok....we might go again before we leave here...
saturday was very nice and relaxing!! people don't understand how NICE it is to be OUT OF MY HOUSE and away in a hotel for a bit!! the boys and i did NOTHING all day but watch tv, movies and play and RELAX!! it is DIFFERENT from being at home and doing nothing because when we are home, i end up cleaning, picking up after the kids, cooking etc and here i do NOTHING!! very nice!! james came home around 6pm and we went to eat dinner....then we went to this house that is just AWESOME and FANTASTIC!!! there are like a MILLION lights on it and there is one area that plays music and the lights light up in time with it!!! i will try to get some of it on video...we are planning to go tonight>..
sunday james got out by NOON!!!! yippppeeee!! and he is DONE instead of on tues! and today, matthew gave me a SCARE! yep, if you guessed he gave us a scare because he had a seizure, you were RIGHT! man, it had been a LONG TIME since one (back in oct)...he was taking a nap and the night before his heartrate had dropped down into the 40's (been a LONG TIME since that one too!) so i pointed it out to james and sure enough, the next sleep (sun nap) he had a small one!! :( it only lasted about 30 secs or so but just enough to give me a SCARE!!! anyway, sunday we spent some time roaming around FT HOOD and we went shopping at the PX and then we met james old army buddy & his family and we had dinner VERY NICE!! well, we took them to that house that has TONS of different stuff going on and they LOVED IT and so did alex (he fell asleep the first time we did it!)....well, we went back to the room to get ready for bed and i hear james yell...BABE COME QUICK! HIS G-TUBE IS OUT!!!! i was like, NO WAY!! so i run in and james said he saw it on the floor....well, normally, this would be a pretty simple re-insertion with no problems....well, there was a PROBLEM!! i couldn't get it in!! and i wasn't sure if it had been out for LONGER than just a couple of minutes and maybe it had been tucked in his shirt or something because when i attempted to try to get it in, i couldn't and he started to SCREAM!! oooohhhh....so i started to get a bit worried and i tried it again and after him just yelling i was able to push it in (sorry for the graffics but it was just like that!)....well, i was sooooo stunned by how hard it had been that i started to worry that maybe it had been out longer and it had closed up and was not in the right place etc...so off we went to the ER (darnel hospital at ft hood)....well, we get there and start the check in process when i hear james tell me, BABE GET A TOWEL QUICK....alex had THROWN UP!!!!!!!!!! and all over james!!! sooooo the matthew part was pretty cut and dry....went in, got xray and got cleared for intake and gave meds and left by midnight!! well, alex story was not so easy....after he threw up, james cleaned him up and then he did it again...and again....and again.....all night long (he had about 15+ episodes of this) my poor boy!!! he was sooooo scared and just didn't know what to do!!! no james is MY HERO!!! i just love this man and he just LOVES HIS BOYS!! he played a GREAT DAD that night with alex....he took care of him and cleaned him up and slept with him and got up with him when he did his thing and everything....such a WONDERFUL MAN!!! i say this because give me blood, give me poop, give me procedures suctions etc but DON'T GIVE ME THROW UP!!! i HATE IT!! i am probably the worst mom for saying that but i just can't stand the sight....uuuhhggg!!!! if i had to of course i would but man, i run the other way for that one!!!! yuck!!! anyway, my poor boy was just miserable all night...
well, on monday, after a sleepless night for alex & james and i, alex woke up looking ok...then he took a sip of drink and there we go AGAIN!!! soooo, i called our dr here in town and the nurse told me to take him to the ER since he had not peed in over 12 hours and was at risk for dehydration...sooooo, off we go AGAIN for alex this time to the ER.....THANK GOD it was pretty much an in and out thing...they just gave him some pedialyte frozen pops and some tylenol (had a slight fever) and that was it! they said he probably picked up a virus THAT QUICK at the ER or at the resterant!!! man....soooo, we drove home with no incidences and apparently after the out the mouth illness comes the back in kind!! FUN!! :)
soooooo, we are home!! we acutally had a GREAT TIME there except for the last couple of hours!! i enjoyed our stay at the hotel and just can't wait to do it again!! we just wanted to check out the FT HOOD hospital to see if it came up to snuff!! :)
anyway, i will upload some pics in a bit!!
Thursday, December 07, 2006
matthew is doing SOOOOO GREAT!! we are sooo proud of him! he had his PT today and she said that in the couple of weeks she started seeing him, he has improved GREATLY and he is so much STRONGER and doing so much more! i am so happy! we have been really working on his standing, sitting, balancing etc and she said it shows! happy happy!
we are looking at getting him the FISHER PRICE BOUNCE & SPIN for him....will be fun and theraputic! soooo happy and excited! hopefully it will work for him (since he is sooooo tall!)...we tried to go with the vtech 3 in 1 smart wheels but it was too small for him! :( we have to return it now...
anyway, so happy all is going well with matthew....just keep going the way you are going little one!!
Wednesday, December 06, 2006
wow...my beautiful 4 year old is doing SOOOOOOOOO GREAT on his schooling....this week, he RE started on his phonics book. i had to stop because at the first, he had not been "getting" it...it was a bit advanced for him (K-2)....WELL, i started it up again this week and he just FLEW THREW IT!! he was understanding BEGINING constantane & understanding ENDING constanace....it goes by ONE letter at a time...and he learned how to figure out the ENDING of a word (the letter) and the the BEGINING of the word (ex if it shows HA_ and has a picture of the word ham, he will say what the picture says and then sound out what the letters they provide and then figure out that the last letter is M!!) he could not do that before! and he is sounding out everything and he is REALLY doing GREAT GREAT on giving me what a word or object starts with (letter)!! he is doing SOOOOO GOOD!! his phonics is GREAT, he is doing numbers and can count (most days) to a hundred and wants to learn to count to a hundrend in SPANISH! and his writing is really coming along. we practice everday on his writing...
alex and his letters A-M
ALEX AND HIS LETTERS N-Z
MY CUTIE!! :)
i had started to panic because there was an article in sundays paper (where i will get some of my quotes) about KINDERGARDEN and how it is now the NEW 1st grade....there is no more napping, there is no more recese and it is all about ACADEMICS....wow...think back to your own kindergarden years....nap time on a towel...going to get the milk for snack time.....playing in the yard and in our classroom....can you believe it no more?! that is such a BIG STEP for these kids to take when they FIRST leave their home for school, some for the FIRST TIME to be hit with all this right off....there are KIDS being HELD BACK in kinder!!! a teacher stated "Anything that takes a lot of time, like finger painting, has been pushed aside," she said. "Building with blocks, that's great for fine motor skills, but those are getting dusty on the shelf." and working with matthew, those are SOOOO IMPORTANT...play is so important and YES you do that at home but what about around their peers?! anyway, this is an ongoing debate in my mind about the merits of the public school system....i am probably in the MINORITY but it is just tooooooo much for these little ones....one parent states "Honestly, she's exhausted at the end of the day," Golobek said. "Kinder when I was little was more about playtime. What was kinder now seems more like pre-school and kinder is more academic. I don't know if that's a good thing or not." little on is EXHAUSTED and it is not from play!!! everything is STANDARDIZED across the board....right now, alex is doing REALLY GOOD but we do it at HIS PACE....and let me tell you, he LOVES to do "class" and sometimes wants to do it more than once a day!! but it is one on one teaching so he gets my FULL attention and in a classroom of 20 or more with usually ONE teacher and an aide?!?!?! how would he do?! but i was panicing after reading this because by the end of kinder:
The student must be able to
– Make predictions about stories and events; put in order simple stories and events
– Distinguish between different forms of text, like lists, newsletters and signs; explain the function each of these serves
– Distinguish between stories, poems and non-fiction books
– Begin to read words and simple stories, write phrases and sentences
– In math, make and use graphs; identify greater than, less than and equal to; add and subtract
WOWOWOWOWOWOWOW that is awesome....but i was panicing until i remembered that alex is still in PRE-SCHOOL NOT KINDER!!! hehehehehehe....made me nervous because i thought that that was going to be TOUGH to do but i still have a whole year and a half to get that done!!! and with alex i have NO DOUBT he can do it!! :)
man, standardized testing is just WRONG....in my opinion!!
Tuesday, December 05, 2006
AWWWWWW....one of my FAVORITE videos of the christmas season!!! you MUST check it out at the BOTTOM of this blog!! just scroll down to the bottom and CHECK IT OUT!! i know most of you have seen it and it is just FANTASTIC and AWESOME what people will do with their christmas lights!! james is sooooo jealous of this persons home!!! if he could he WOULD!!!! :)
Posted by Maria at 1:07 PM
yep, last night, matthew was officially in his OWN ROOM and ooooohhhhh how empty it seemed without him in OURS!! we were really sad but i know he was ok. the nurse came in a little after 8pm and she stayed till a little after 6am....it was DEFINETLY different having someone in the house to watch over your special kiddo...she was good though. and of COURSE i didn't get much sleep! I think it will take me at LEAST acouple of days or more to feel relaxed enough to sleep. i slept with my GLASSES ON so that i could see the monitor...i might have to move it a bit closer so i don't have to! (defiently need to get my eyes FIXED!!!) but he did GREAT and there was no fuss or anything on his part! he did get miffed that his new friend came in the house and gave him a treatment and cpt and SUCTION at their meeting!!!!! he was not a happy camper but as soon as the meds kicked in he was off to lala land! and he had a pretty good night....she had to mess with him 2 times last night....the first about midnight or so (junky had to suction) and the 2nd about 3 almost 4 in the morning he started to desat (drop his oxygen levels) and she had to do some repositioning and cpt...so all in all he had a nice night...
our room was LONELY!! you get sooooooo use to having someone else in the room with you that you MISS IT SOOOO MUCH when they are not there....we could see him on the monitor but not having him there to hear him breath, listen to his little movements or hear his alarm go off in our room was an experience!! i MISSED HIM SOOOOOOO!! it was sad to not have him there and our room felt SOOOOOO EMPTY!!! he is 30 months old and he was only not in our room whenever he was in the hospital...wowowowow...but i know this is BEST....and it will get better as i let go abit BUT JUST FOR THE NIGHT! it was hard...when you do all your childs treatments, suctioning, tend to all his medical needs and then give it up to someone else in your OWN home (not in the hospital) it is hard....you get ansy wanting to do it yourself and just watching them do it THEIR way and knowing that they have to...it is hard....i stressed about them being in my home all week last week and my tummy let me have it by weeks end!! sooooooo much acid produced and even WITH my own nissenfundoplication (tummy wrapped around the esophegus to STOP acid from coming up (refluxing)) the acid was in my throat and in my mouth and just about everywhere else! i actually had to take some aciphex meds (prescribed) for the FIRST TIME in over 7 YEARS!!!!! since my surgery in '99, i had NOT been on ANY acid reducing meds! but with all the stress, well, there you go! BUT i am SOOOOO HAPPY to have them here and it will just take some adjusting on my part and getting us to...no big DEAL!! and the GREAT thing about it is that the daytime nurse (she will be coming on thur & fri) i TRUST and i am SOOO HAPPY with and the night nurse is really nice too! just adjustments!!!
anyway, so, we surved the first night with matthew OUT of our room and into his OWN room and having a nurse for the night....not tooo bad!!! :)
Sunday, December 03, 2006
i just had to post this because i know SOMEONE ELSE must be reading it since i have so many hits soooo....where i made matthew and alex video montage they have this new gallery set up that shows other peoples montages and WOWOWOWOW...they have some REALLY nice ones there...here is the link:
i have seen alot of special needs kiddos there and just so REALLY touching ones...so i thought i would share with ya'll so you can enjoy them too!!
well, we are off to start getting matthew room together...james just walked in! KINDA SCARED but we know it is the right thing to do!! 30 months old and still in mommy's & daddy's room!! he is now being moved to his OWN ROOM!! WOOOHOOO!!
Posted by Maria at 3:05 PM
the end of this week i found out that we were going to go to our NIGHT NURSE and we met her on friday!! she was REALLY NICE....she will be here MON THRU THURS 8pm -6am and what a relief that will be...i know it will take some getting use to and i will have to adjust but i think in the long run it will be a RELIEF to know that someone is watching over him!!! we will be MOVING MATTHEW to his new ROOM!!!!!!!!!!! wowowowowowowow....it will be the first time in over 30 months that he will NOT BE IN OUR ROOM!!!! he has been there from the moment he come home when he was 98 days old.....i know it will DEFEINTLY feel like someone is MISSING...my beautiful boy...to not look over and see him will be a SHOCK and i think i will probably be up and down for a couple of days that he is not there....checking in on him and seeing if he is ok. i do have a video monitor that i will have on him but it will NOT be the same!! and to have someone else get up and do his feeds and turn him and re-position him...wowowow..i hope i can do it!!! but anyway, it is exciting..and scary. we will have to move him stuff TODAY because she will be here on MONDAY and i have to have him in his room by then! my big boy!!!! james was like, what do we do the days she is NOT there (fri-sun night) and i told him we can either sleep in his room or we can bring the playpen and put it in our room...i don't know how all that will work out....if we bring him to our room that would mean we have to bring ALL HIS EQUIPMENT with us....hmmmm...not too sure how that would work...
well, this weekend james had guard duty sooooo it was a nice quiet weekend...we did go to a new holiday light display (www.hillcountryholiday.com) and it was nice....
kinda disappointed that there was not as many lights as i thought there would be. we did stop and go decorate the cookie and have hot chocolate....alex was having none of santa but matthew got some pics with him. we saw a reindeer and the kids didn't want to do the petting zoo!!! we got a couple of pics of matthew with santa....sooo, i will rate it good....james and i both agree that we don't think ANYTHING will top the one in FORT HOOD,TX...that was over FIVE MILES of lights and animation that spanned the lake park there and that was just AWESOME!! it took over an hour to do it all..and THIS YEAR (we might be going to fort hood next weekend) we hope to go again and stop at the santa shop there!!! HOPEFULLY!!!
anyway, here are some pics:
here is tia indi, myself and matthew drink our hot chocolate and eating our cookies!
matthew looking at santa...
and i promise you we had alex there but we had to wake him up in the car because he fell asleep and he was in a BIG MOOD!! no pictures for him!!!!