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Matthew's MAKE-A-WISH TRIP!

Matthew's MAKE-A-WISH TRIP!
Wishes DO come true...our FAMILY in FLORIDA!! :)

Thursday, February 11, 2010

MATTHEW is in the hospital.....and other news...

HELLO EVERYONE!!

i hope everyone is doing WONDERFUL and enjoying their 2nd month of the year!! as for us, well, we are doing fine....i tell you, i hope we are getting all the 'bad' stuff out of the way EARLY in the year so that the rest of the year would be sssmmmoooottthhhh sailing!!! :)

i just wanted to send out an update.....i know, 2 in 2 months...well, matthew is in the hospital right now....he was admitted yesterday due to a rash ALL OVER that started last week....i am sooooo THANKFUL that we have such a WONDERFUL dr that didn't just blow off his symptoms like most drs would have and instead decided that after seeing him 2 days (mon/wed) that he needed to be admitted cause he was not getting better....they diagnosed him with KAWASAKI SYNDROME....his cardiologist said we needed to play the lottery cause him have TAPVR (rare CHD) and now this (which is also very rare) is just unheard of!! only matthew would say DIFFERENT!!! soooo, this is the earliest diagnosis (we were 72 hours into it) she has ever made so that is a GREAT AND AMAZING thing!! it dropped his chances for an anuerism to 2% or sooo...THANK YOU GOD! they are treating it with IVIG and HIGH DOES OF ASPRIN (5 baby asprins every 6 hours)...they started his IVIG and asprin last night....i am just praying that he responds to it...he has been so miserable now for a couple of days....he didn't ever look like matthew... i had only heard it because JET TRAVOLTA had it when he was 3 and i remember when he died, the mother said that THAT was what caused his death (which was NOT true)...anyway, if you google it is says that young kids get it (which is why it is soooo rare for matthew) and that it imight be caused by cleaning your carpets...not true...it is actually your body fighting itself because there is a virus in it...not a good thing...it does effect the heart, which scared me SILLY!!! and plenty of fluid....he is finally looking a LITTLE better...you can see pics on facebook...he was soooo swollen and red all over....just so you know, the symptoms are ALL OVER RASH, FEVER FOR 5 DAYS, LIPS-SWOLLEN, RED AND CRACKED, EYES-RED (RACCON EYES BUT RED) AND THE WHITES ARE RED TOO (KINDA CREEPY LOOKING), FEET/HANDS- SWOLLEN AND RED, TONGUE- LOOKS LIKE A STRAWBERRY (BRIGHT RED AND HIS TASTE BUDS WHITE) AND SWOLLEN LYMPH NODES(he did NOT have that yet)..as she was reading the signs/symptoms, i just kept nodding........his face just look HORRIBLE!! at first we thought it was a rxn to one of his drugs and we were AFRAID that it would be on of his SZ meds and that would have BAD cause he is on such a 'perfect' mix and dose right now that i sure didn't want to mess with it!!! and neither did his nuerologist! anyway, GOD WILLING we will be getting out of here this weekend....it was funny cause his pedi dr said laughingly, 'well, good news is that there is no holidays this weekend!!" and i had to remind him that valentines day was on sunday and then presidents day was on monday!! he just GROANED!! if you remember, matthew is NOTORIOUS for having 'drama' on holidays or on vacations....just last month he was dx with RSV (i don't think i mentioned that before) on NEW YEARS EVE.....only MATTHEW!!! :) soooo, any prayers or good thoughts would be REALLY appreciated....

as for the OTHER news for the month...i am going to be having surgery next week (17th)...yep, they decided that i needed to have my stomach corrected after all....they think my nissen is fine BUT apparently, all my GERD/reflux symptoms i had been having since i had joshua were because i had a hiatal hernia and my nissen/stomach went THRU it and is now sitting above my diaphram!!!!! so, THAT is why i am having such a time with my reflux/pain...it's getting SQUISHED by my diaphram every time i BREATH!! FIGURES! :) soooo, they are going to pull down my stomach to where it is suppose to be, anchore it with a GTUBE (yes, matthew and i are going to be TWINS cause we will BOTH have feeding tubes) then fix up the hiatal hernia!! now, the gtube is just temporary (about a month) so that my stomache will adhere to the wall there where the gtube...then they will take it out and it will close up and my stomache SHOULD never move from that place again and go back UP! :) i know, WIERD!!! i guess i can say the same thing as i said about matthew....ONLY YOU, MARIA, THIS WILL HAPPEN TO! :) but hey, maybe they can do a little lypo/tummy tuck when they are in there?!?!? i will have to ask the drs about that!! ok...i think the WORST thing about this whole surgery is that i am going to be on a FULL LIQUID DIET for about 3 weeks....i did this 10 years ago when i had the nissen and it was hard then, i can't imagine how hard it is going to be NOW that i have 3 kids!!!!!! the crazy thng is that you can't ''cheat" like any other time...you know, grab a pinch of food here, a bite there...nope, if i did that, i could CHOKE to death!! my esophagus will be so swollen, it will not let anything but liquid thru!! so, instead, i will be eating applesauce, jello, pudding, broth with no noodles or anything, and ensure for 3 weeks....YYYYUUUUMMMMYYYY!!!! james says he will be on the diet WITH me...i give him 2 days before he caves!!! i am just wanting this to be done and over with....one of my aunts jokingly asked 'what are you giving up for LENT? SOLIDS?" which i thought was sooo funny! i had actually not realized that i would be having surgery ON ASH WED!! who knew?! it has got to be a good day since it is a HOLY day of obligation! :) i need to make sure i get some ashes from somewhere after my surgery....i just MIGHT give up solids for 40 days and nights...maybe....of course, my luck,you would think that i would lose ALLLL this weight and i end up gaining it or something....i NEED to lose some...i hope that is an ADDED benefit!! ;)

anyway, my other 2 boys are doing WONDERFUL....alex is doing great in his class...he is just sooooo smart! :) he amazed me the other day (every day) when he asked what SUDUKO was...i showed him what the concept was and that was IT, he figured it out and started working on a puzzle IMMEDIATLY!!! it took me FOREVER to figure out WHAT i was suppose to do!!!!!!! and i am so proud...his math, he is doing GREAT! he is adding/subtracting/borrowing/carrying over up to the 100's and working on the 1000's! and again, i didn't have to really teach him anything...just showed him what to do one time and he was OFFF!!!! :) love it! and GOD WILLING, this year in May, he will be making his FIRST COMMUNION and we are sooooo excited and happy!!! :) big boy...and this week, he started his first HOMESCHOOL PE CLASS and boy, he LOVED IT!! there are about 13 kids in it and she made them do laps, jumping jacks, sprints, jump rope etc and he said he had a BLAST! he was sooo worried about the week after i had my surgery and who was going to take him cause he didn't want to miss! i told him that i would take him...he LOVED IT!

and joshua...really, what can i say...he is such a CUTIE, and such a SMARTY...i love when he talks and tells me 'love you', and just huggs and loves on me...he is still a mama's boy and i am LOVING IT! ;) he is still a little bully!!! he will go up to matthew and wrestle him DOWN!! and we have to be VERY careful cause he and matthew fight alllll the time! and i mean FIGHT....i tell you, in a former life, i don't know WHO joshua was....maybe a soldier or something cause he knows how to 'shoot' a rifle and gun (even with sticks and such), he can box and fight, wants to play with KNIFES, SCISSORS & FIRE and he LOVES to play all kinds of sports...scary!!! just the other day, we had SUCH a scare cause i had left my pill box in my purse and he got a hold of it and took a couple of bites of my PILLS!!!!! CAN YOU SAY OMG! how scary?! we had to take him to the ER per poison control cause i didn't know how many he had taken....but THANK GOD, everything was just fine...IF he actually had any, it was really minute....it sure taught me a BIG lesson that i guess i had forgot or just was not as watchful but after this, i am looking at EVERYTHING around him to make sure he can't hurt himself...again, ONLY JOSHUA!!!

and james is doing great...such a AMAZING hubby and daddy! he is working HARD and just being recognized for it...we are sooo proud of him....he is getting ready for the BIG move....he is trying to find his soldiers other places to move them to (other battalions)...it's alot of work...not to mention that HE has to find a job himself!!!! :) but again, that is my MAN!!! love him...he and i celebrated our 13th wedding anniversary on 2/1/10...it has been 13 years of BLISS....i have always been soooo THANKFUL to GOD and felt soooo BLESSED that GOD brought him into my life...he is just an amazing daddy and husband....not many would be able to go thru what we have gone thru (with matthew) and still be around....not many would LOVINGLY, WILLINGLY learn everything they have to do so that their children would be healthy and happy...he is something else! THANK YOU GOD!

anyway, sorry to 'talk' your eyes off....i really just meant to talk to you about matthew but i thought i would throw everything else in...i would appreciate ANY thoughts and prayers for our beautiful son MATTHEW....he has been thru soooo much in his life...and in the last month and a half, he has had to deal with RSV, tons of treatments, suctioning and steroids and now THIS!!! i just pray that there are no lasting effects from this....

and if you can spare a thought for me, i would also appreciate any thoughts and prayers for me for next week when i have my surgery...i worry about my boys and leaving them for a couple of days....again, i am just so THANKFUL that james is a GREAT father that i KNOW they will be taken care of WAY beyond anything! and for all those weeks on the liquid diet...YIKES!!!

ANYWAY, take care and GOD BLESS....i will be updating on matthew on FACEBOOK and i will try to do on my BLOG too (www.blessingsinmylife.blogspot.com) ....if you are on FACEBOOK and want me to add you to my 'friend', just email me with your info and i will look for you on FB...apparently, you can TRY to look for me but there are SOOOOOO many ME's out there, you can't find me!!! :)

ok....GOD'S BLESSINGS TO ALL!!!

MARIA, JAMES, ALEX, MATTHEW & JOSHUA

1 comments:

Mom of Many said...

I'm following your blog now. My oldest son is also a TAPVR survivor.