Matthew is going to get NEW WHEELS!!! :)

hello there!!! we are just sooooo excited that MATTHEW will be getting his NEW SET OF WHEELS in a couple of weeks!!! remember, at disney world, he BROKE his stroller/wheelchair and now it is time to move on to a 'REAL' wheelchair....we are going to be getting the

KIDS ROCK WHEELCHAIR by KIDSUP!!! here is a PICTURE of what he is getting EXACTLY!!



except we are going with the GREEN instead of the orange.....we are soooo excited because it is going to fit his needs exactly! why? because it actually ROCKS and is MEANT for him to extend himself like he does when he gets excited!!! that is AMAZING!! it is not a STATIC CHAIR....it moves with him if he gets excited and jumps around, we can still push him OR he can self propel himself!! :) i LOVE IT!! AND we can tilt him when he needs to sleep or relax!! soooo AWESOME!! it has been almost 4 years since he had a chair....the other one was falling APART on us!!

here is a VIDEO on what this wheelchair DOES!! VERY INTERESTING!!

i will let ya'll know when it comes in!! WOOOOOOOOOOO HOOOOOOOOOO!!!

MATTHEW out of hospital....the SCARE of my life...

hola everyone! i hope everyone is doing great....well, after 14 months of no seizures and 18 months without those BIG seizures, matthew had another sz on THURSDAY out of the blue.......and BLUE is the key word here...here is what happened...


well, matthew was taking a nap and the nurse had been watching....about 30 mins in, i checked on him to ask how his heartrate was....it had recently been in the 50's and i was just concerned with what it would be...she said it was 89 and that he had woken up...i told her just to let him chill out in his crib for a bit to see if he would go back to sleep....well, i went back in about 15 mins to check on him and he was still awake so i just walked in and said "let's go ahead and take him out, he is not going to back to sleep" so i raised his bed and i was just talking to him and he was just laying there actually looking steadily at the nurse....i tried to pull his gaze away and he would but then come right back....so i asked her if he had been staring when he woke up or if he had had a SZ...she said that no, he had been acting fine and had been smiling and such before i walked in to get him....i just felt LIKE SOMETHING was not RIGHT!!! it was really bugging me but i just KNEW that something didn't feel right....so i kept bugging him and trying to get him to interact with us...he WAS but just not very well...kinda lethargic like...sooo, i just kept on him...i turned on his DVD player and put on his FAVORITE show which he USUALLY goes crazy for and just gave it a quick stare and that was it....i told the nurse SOMETHING was up...i took his temperature, checked his shirt to make sure he had had a sz before (he drools ALOT when he does) AND just overall checked his limbs....we changed his G-TUBE and i was just messing with him and giving lots of love....i was concernec enough that i didn't want to leave him like i usually do to go finish up alex's homeschool....so then i said, 'i am going to cut your nails" something he HATES to do....so i get my clippers and he is just looking at me...then i start to clip and nothing...as i got to his second nail, i SAW HIM GET BLUE AROUND THE MOUTH AND FOREHEAD and i told the nurse, ' did you see that? pull on his pulse ox QUICK" AND she didn't know what was happening and then he did it again and i told her "get me the oxygen NOW" he is not breathing and he is BLUE!!!!" and as she did it, i HONESTLY with ALL MY HEART thought that he was having a HEART ATTACK...he had NEVER had this happen to him, turning blue like that i didn't know WHAT WAS GOING ON!! i had the HORRIBLE THOUGHT that i was going to have to do CPR on him because i thought he was DYING!!!! it was probably one of the SCARIEST time in my life....i had thoughts about THANK GOD WE DID MAKE -A-WISH....anyway, i started to blow on matthew trying to get him to breath and he was just LIFELESS and BLUE so, i got him down and kept trying to stimulate him while HURRYING the NURSE to QUICKLY get the oxygen...i called to my WONDERFUL SON, alex and told him to get me the phone because i had to call 911....he was sooo awesome!! i called 911 and i told him i did NOT know what was going on only that my son had stopped breathing and was blue and because YES had sz disorder but this was NOTHING like i had ever experienced.....he dropped his sats to 50...it was soooooo scary!!! EMS and FIRE got there within 5 mins and i administered his DIASTAT because he had finally started to have a sz the "normal' way...he was just lifeless....i told the parametics that they needed to bag him because i was sure his CO2 levels were high cause he was not effectivly breathing even though his O2 sats were 100%....they bearly heard any breath sounds....so off we went to ambulance and they started to bag him and we went CODE 3 to the hospital...the ended up INTUBATING him and they gave him 4 doses of ADIVAN (anti convulant) cause he was still szing and they did a cat scan and blood work....we ended up in PICU 7....later that evening, he SELF EXTUBATED himself :) everyone remembers when he did it both times as a BABY!!! :)

well, THANK YOU GOD, he is doing well....we came home today after less than 24 hours there....we increased one of his sz meds and as of RIGHT NOW he has been awake for 22 HOURS because he can't sleep!! i found out it is a side effect of all the MEDS he had and it will wear off soon...he is trying soooo hard to sleep but he just can't..he keeps crying and being upset...

well, THANK YOU ALL for the thoughts and prayers....we are now AGAIN on HIGH ALERT... we got REAL COMFY with him not having ANYTHING in over a year....i am very happy it didn't happen in FLORIDA and of course, matthew had to pick the PERFECT time when no one should be NEAR the hospital with all this FLU EPI!!

ANYWAY, please just pray that he SLEEPS COMFY tonight and these sz go away AGAIN!!

GOD BLESS....

WE ARE HOME!!!!!!!!!

WOWOWOWOWOWOWOWOWOWOWOWOWOWOW......

it goes on and on...because no WORDS in the human LANGUAGE can express how AMAZING this last week has been....there is NOTHING i can say that will give you a clear PICTURE of what a BLESSING it has been and what it was like....i can only give you a GLIMMER of what an amazing thing it was....so when i tell what happen, in your own words, put in words like: AMAZING, BLESSING, DAZZLING, ROYALTY, AWESOME, OUT OF THIS WORLD, etc....because i am doing this trip an IN JUSTICE by what i am about to write....that is absolutely how AMAZING it was.....we have been BLESSED and dreams DO COME TRUE!!!!!

SOOOO, for all those that don't like to read about someone elses trip, the VERY short of it was that it was AMAZING and we had such a BLAST ON OUR TRIP!!!

IF you want to read all about it...be warned i am going to go into DETAIL because this is also for my family to have a link to what an amazing time we had so we can NEVER forget it....even though i know we wouldn't!!! sooo, be ready for some heavy reading and some MAJOR picture works...i will probably make a montage of our time there (we took OVER 700 pictures!!)


sooooo, get ready read and look at some pictures!! it will take me a bit to write it all down but i WILL DO IT!!! i am actually going to DATE THEM in order of the days we left here starting with APRIL 18 and ending with APRIL 24TH...oh, what a RIDE!!

for those looking for info on GIVE KIDS THE WORLD or GKTW, i am going to be going into detail so if you don't want to know about the SURPRISES or the exact details, be warned that i will reveal them here in this BLOG!!! sooo....

TAKE CARE AND GOD BLESS!!!

DAY 7....GOING HOME...SO SAD....

well, today is the day....we leave PARADISE for our own personal paradise....HOME!! alex keeps verbalizing what we are all thinking....I DON'T WANT TO LEAVE!! yeah, we are all sad to be leaving KNOWING that are 'ONCE IN A LIFETIME' is over!!! but oooohhhhh the joy, fun and BLESSINGS we had and recieved during our stay is what is amazing.....i can't believe that was us and how much fun we had. we lived EVERY SINGLE DAY to it's FULLEST and the kids just had a BLAST!!! they enjoyed it all!! and this AMAZING BLESSING that we recieved was all made possible thru the MAKE-A-WISH FOUNDATION!!! that post is coming up about them SOON!

sooo, we started our day by making packing all our bags into the van, making sure that we had everything out of the villa before we left....then we packed up the kids and headed out to check out...awwwww....very bittersweet because i sat in the seat that we sat at when we FIRST arrived....after donating the extra stuff we had, we recieved our package and HEADED OUT!!! we were rushing (as usual) because we had forgotten to gas up the night before so we passed where we were suppose to gas up and ended up going to the MCDONALDS and getting breakfast, then going back to gas up and then we were OFF....and we were RUNNING!! yes, we were suppose to be at the airport BY 1000....well, we didn't get there till 1030!!! :( sooo, we were rushing to get EVERYTHING out of the rental van and onto one of those dolly's and then WAIT for the person to come get the keys etc from the rental place.....AVIS by the way....and then we were off!!! did we know where!? of COURSE not! we felt like a couple of chickens without HEADS!!! sooooo, we head off to check in and we are hurrying, not YET running but pretty close....so we finally find the AIR TRANS office and OF COURSE we didn't pre-check in at GKTW....yeah, we are NOT season flyers!!!! soooo, we stand in line with the other 10+ families ahead of us and i am starting to PANIC just a bit...as the time moves CLOSER to 1100....our plane leaves at 1153!!!!! soooo, we FINALLY get all that, check in our bags and off we go towards GATE 18.....so our nurse told us was our gate...so we travel to gates 1-50 and as i am standing in front of security READY to start the process, THANK GOD, james decides to look at the ticket the nurse was looking at and found out that we were in SEAT 18 and acutally.....ready for this.............GATE 97!!!!!!!!!! CAN YOU SAY OOOOOHHHHHHHHHH SSSHHHHHH*******@@@@@@@@@@@!!!! AND it was not just a bit a ways, it was CLEAR ACROSS THE OTHER SIDE OF THE AIRPORT!!!!! so, NOW we were RUNNING!!!!! just imagine, 3 adults, 3 kiddos one in a wheelchair another in a stroller, 4 carryons, one camera bag, one feeding bag, a blankie, a stuffed animal alex one AND A CAR SEAT....RUNNING ACROSS THE TERMINALS TO GATES 51-100!!! if that tells you HOW big this place was, nothing else will!! soooo, we FINALLY get to the security check point and we are sweating, freaking out knowing that we have a little over 30 mins before the plane leaves.....we look like a comedy group trying to get shoes off, fold up strollers, get our carry ons off our backs and onto the belt try to get everything done in MINUTES when we KNOW that it takes A LOT of minutes....OMG, it was 1130 and they stopped james carry on because of matthews formula....so FINALLY we are OFF and RUNNING LIKE CRAZY for the gate and OF COURSE the gate is not the FIRST ONE...ooooohhhhh no, it is WAY OVER THERE....so we FINALLY get there at about.....you ready for this......1140!!!! they were waiting for us and you have to remember we have ALL this stuff with us we have to stow AND we have 3 kids, 2 strollers that we had to BREAK DOWN and then put everyone in the plane....ok, did i MENTION we were the LAST ONES ON THE PLANE?!?!?! yeah, we ALMOST missed it!!! as we came down the VERY narrow aisles, we are that family that all you see is the people DUCKING because backpacks, kids feet, etc are going THRU!!! as we all finally get sorted out, everything SHOVED where ever we could and everyone is sitting where they are suppose to be....there we sit, AIR DUCTS BLASTING, faces SWEATING, out of breath.... we are FINALLY on our way HOME!!!!!! and boy, AT THAT MOMENT IN TIME....we were READY to go home!!!!! after all that crazyness, THANK YOU GOD, we made our layover, ended up getting home on time....and the boys were excited to be home....ME TOO for that matthew....we had an AMAZING time and had SOOOO MUCH fun and we just felt sooooo BLESSED to have been BLESSED with such an AMAZING ONCE IN A LIFETIME VACATION!!!! :) THANK YOU GOD FOR GETTING US HOME SAFETLY and THANK YOU GOD for MATTHEW'S MAKE A WISH TRIP!!! :)

JOSHUA looking out the window to the CLOUDS!!


THANK YOU GOD, we made it HOME!! :)


this is ALLLLLL OUR LUGGAGE!!! YIKES!

DAY 6.....

wow....we were starting to get sad that TOMORROW we were leaving back home!!! so sad....well, we started our day off by getting up, getting dressed and heading out to go eat some yummy breakfast at the GINGERBREAD HOUSE....we decided to ride the little train to get there and enjoyed a little more that day....we decided that we would take it LIGHT today because we knew that we had to pack and TODAY was CHRISTMAS AT GKTW!!!!! soooo, we could miss that!! so, after eating some breakfast and then playing at the merry-go-round and then go play in the CASTLE of WISHES...the boys enjoyed being there and just looking at everything in there....

we walked back to our villa and on the way we visited MATTHEW'S BOUNDLESS PLAYGROUND for some fun there....all the boys had so much fun going down the slides and climbing all the way up!! we had fun just swinging and watching the boys!!

sooo, today we went to ISLAND OF ADVENTURES to check out a couple of thrill rides and just to say we WENT there....we did discover a COOL place called SEUSS LANDING! and we got to ride a couple of their rides there, everything was so awesome there because it was all DR SEUSS themed park and it was so AWESOME!!! just like who-ville and some other famous books....very AWESOME!! the nurse and i decided we just HAD to get on ONE thrill ride and we chose.......THE DUELING DRAGON ROLLERCOASTER!! here is a VIDEO i found on YOUTUBE!! IT WAS AMAZING!!! i wish i could have done it MORE than once!! and we just walked RIGHT IN with no wait!!! :) soooooo awesome!!

well, we rushed thru the park because we wanted to be out of there BY 4:30 because the walk back to the car was CRAZY and did i mention that it was VERY HOT????? it reached to 94 degrees and we FELT IT AND THE HUMIDITY THRU OUR PORES!! yep, hot! so, we hustled out of there back in the car and OFF we were back to GKTW to eat some dinner, have a WONDERFUL CHRISTMAS DAY and the make the boys pillows and put matthews star...

sooo, we got there and went in to the GINGERBREAD HOUSE and ate our CHRISTMAS DINNER!! YUMMY turkey with ALL the trimmings...we THOROUGHLY ENJOYED every bite! and the boys did too! after we had some dinner, we went ahead and went out to walk around GKTW and listen to the Christmas music and look at all the BEAUTIFUL Christmas decorations that had been put around the place....just the attention to details that are always there....so AMAZING! i of course got all emotional...they had cookie making station, some snow cones and then, we got to go into the theater (which we had not explored yet) and who was waiting on the other side?!?!?! SANTA CLAUS!!! oooohhhh...the boys were soooo excited! josh didn't seem to thrilled but we all were....well, as soon as we put the boys on santa's lap, JOSH didn't want anything to do with HIM and THEN because baby brother went off, so did MATTHEW!! yep, those were OUR kids pitching a fit!! and we couldn't get them off fast enough!!! anyway, it was too funny! they were soooo awesome EACH boy was able to pick a toy from the MOUNTAIN of toys there...sooooo generous...our boys were just LOVEING it! well, after all of that excitment...we went outside and we found out that there was going to be a PARADE out there!! awwww...it was so awesome!!! the floats and the characters...so amazing...they all came over and talked to the kids and we had seen earlier in the evening a busload of high schoolers that had come in and i realized YET AGAIN, that this wonderful parade was made up of all these HIGH SCHOOLERS that had given up an evening to be with us and make some wonderful kids HAPPY with their presence....of course, again, there i go with the waterworks! just AMAZING!! and then it SNOWED there and we had sooo much getting it EVERYWHERE....

AFTER our amazing evening there, we went over to the CASTLE OF MIRACLES and the boys redeemed their coupon for their PILLOWS that they each got to keep, and then matthew's STAR was placed on the CEILING of this beautiful place FOREVER!! we even got a PASSPORT with a barcode and we could ALWAYS go back so that we could see EXACTLY where matthews star was with his name on it!! just amazing to see all the OTHER stars that were up there from all the OTHER MIRACLE kids that have passed through those doors....sooooooooo BLESSED...'

well, after a WONDERFUL EVENING, the nurse and i ended up going BACK to the villa so that we could pack all our clothing and get that done...the boys ended up staying and playing some PUTT PUTT and the video games and such....it made it easier so we could get it done BEFORE the boys got there....it was REALLY NICE!

here are some pictures from our day out there!

SEUSS LANDING there at ISLAND OF ADVENTURES! soooo much fun!


HORTON HEARS A WHO!! so DETAILED!


CAT IN THE HAT!! cute!


so excited to see THE CAT IN THE HAT!!!


The Grinch and let me tell you he was in CHARACTER!! very moody!


my cute big BOY!!!


here he is in the car!!!


Back at GKTW...wait to take a picture with SANTA!


2 of the 3 boys NOT excited about this!!! :( both josh & matthew SCREAMED and CRIED!


"MOM, CAN I TAKE THIS HOME?" he LOVES popcorn like we all do!


aaaawwwwwwww.....


The decorations for CHRISTMAS DAY at GKTW!!!


POSING with MAYOR CLAYTON...the MAYOR of GKTW!


IT'S SNOWING AT GKTW!! sooooo exciting!


Dad giving kisses all the way around! one for JOSHUA!


ONE FOR MATTHEW!!!


ONE FOR ALEX!!!


ONE FOR ME!!! :)


MATTHEW posing with some characters!

DAY 5.....

ANOTHER BEAUTIFUL DAY in FLORIDA!!!! yes, we were sooooo tired and we could feel it all catching up to us but we were having so much fun that we tried not to let it get us down!! we all got ready and dressed and then had a CONTINENTAL BREAKFAST there at our villa which they came and dropped off....NICE!! then we were OFF!!!

sooo, we started our day off by parking our car at MK and taking the monorail over to EPCOT to check things out!! wow, what a GREAT PLACE!!! i think james and i would really enjoy it MORE if we were by ourself out there because of all the different countries and exploring them all! the boys were interested but not by much! we did go and to the CRUSH show which the boys LOVED and we got to meet a couple of characters there too! we also got to take a BREAK at the BASE21 area that is available to the WISH FAMILIES...it is an AMAZING PLACE that is actually part of SIEMENS lounge....very nice!! the very nice lady there was so kind and we were able to cool off and have some beverages and just watch matthew become FASINATED by the floor!! the receptionest could change the color of the floor and matthew could not get ENOUGH!!!

AFTER we left there, we took the MONORAIL over to MK to spend the rest of the day there...we just enjoyed doing the rides again that we REALLY liked and just had a fun and walked around....we stayed around for the PARADE OF LIGHTS again and the FIREWORKS SHOW...again, we didn't leave there till 1045 pm...we were SOOOOO TIRED but SOOOO HAPPY!! what an ADVENTURE we were having!!!!

EPCOT BALL!!!


visiting with SNOW WHITE!! he was acting all SHY!!


OUR BEAUTIFUL BABY BOYS!!! :)


AWWW.....DONALD DUCK!


JUST BEING GOOFY!!!


CHIP AND DALE! joshua was having NONE OF IT!


HEY?! DID YOU SEE THAT?!?! Matthew was AMAZED at BASE21 because their floor changes COLORS!! HE LOVED IT and couldn't stop LAUGHIN!!


wow, it changes colors again!!! can we get one of these?!?


THE BALL again!


the beautiful CASTLE at DISNEY!


THE PRINCESS AND HER COURT!


it's just soooo PRETTY!! so detailed!


WOW....this is what it looks like at the end of the day!

DAY 4.....

well, today is the DAY!!! we decided that today we would hit up the AWESOME world of MAGIK KINGDOM or better known as DISNEY WORLD!!!! we were so excited and we were raring to go!! so we woke up and got everyone ready go and put on our T-SHIRTS that i made that for the 5 of us said "MATTHEW ISAIAHS MAKE A WISH TRIP....PICTURE OF HIM....DISNEYWORLD FLORIDA APRIL 18-24, 2009!!" matthews said the same thing except for at the top it said, "THANK YOU MAKE A WISH FOR MY WISH!" ...we got ready and went to eat at THE GINERBREAD HOUSE...YUMMY!!! the atmospher there is so welcoming and loving....i just LOVED being there!! we were all soooooo excited about going to the MK today....

well, we got there and all the kids (and adults) were SOOOO EXCITED to be going FINALLY to the big park!!! i knew that the first thing we were going to get on was the DISNY EXPRESS TRAIN!!! it was soooo awesome to go around the park looking at all the sights and just ITCHING to get on some of those rides.....

we caught the daytime PARADE and it was soooo awesome!! some of those TALL PEOPLE came down to matthews level and gave him a high five!! we started our day at SWISS FAMILY ROBINSON TREE and poor james carried matthew all the way UP and down...but he loves his son SOOOOO MUCH that he did it all just so he could experience the attraction...i remember doing this tree as a child when we went to DISNEYLAND in california....looks just like this one! anyway, we did a few rides there and then went over to MINNIES house and to check out some more stuff...we got to take pictures with the star of the place MICKEY MOUSE AND MINNIE MOUSE!! we did TOMORROW LAND and ended up eating lunch there at the burget joint and it was GOOD!! we road some other rides such as IT'S A SMALL WORLD, BUZZLIGHT YEAR, MONSTERS, INC, PETER PAN, THE MAD HATTERS TEA CUPS, etc....and what i ABSOLUTELY LOVED ABOUT IT was that about 99% of the rides both JOSHUA (1 YEARS OLD) and MATTHEW could get on with us!! ABSOLUTELY PERFECT!! we had soooo much fun as a family. just amazing....and EVERY SINGLE TIME, even though we rode the ride SERERAL TIMES in a row, joshua would KICK AND SCREAM cause he did NOT want to GET OFF THE RIDE!!! and i mean, REALLY kick and scream with crocadile tears etc....awwwwww....it would break the hearts of everyone around us!! that is another beautiful thing about THE WISH TRIP....we ALWAYS went to the front of the line....we could ride the ride SEVERAL times if we wanted to without getting off the ride and we NEVER had to stand in ANY line!! :) we were actually able to see the whole park because of that!! if not, the lines were 1+ hours long at each one!!!

anyway,we stayed thru so that we could see the LIGHT PARADE and then the FIREWORKS WISHES SHOW....we didn't ended up getting out of there till 1045 pm but oooohhhhh what fun we HAD!! the boys (and all of us) where CRAZY TIRED....but we had sooo much fun!!! we were OFF to GKTW and like always, as we cruised up at 1130 pm, they always welcomed us by saying 'WELCOME HOME!" JUST amazing!!!

HERE WE ARE the first place we went to was to RIDE THE TRAIN!!! :) SOOO AWESOME!


WE then visited with DAISY DUCK....


here we are in front of the WORLD FAMOUS PRINCESS CASTLE!!


HERE ARE THE BOYS with their CANNON'S in front of the SWISS FAMILY ROBINSON:


AHHHHH....the SWEETHEARTS together! :)over 14 years together!! :) this was at MINNIES GARDEN....


this was the entrance to where MICKEY & MINNIE WERE AT! :)


FINALLY, meeting MICKEY & MINNIE!


matthew was SOOO EXCITED!!


here are the boys with them....josh was CRASHED OUT!! :(


NEW FRIENDS!!!


RIDING IN STYLE!!


having FUN on the ROAD!!!


IN THE TEA CUPS!!


BEAUTIFUL!!!