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Matthew's MAKE-A-WISH TRIP!

Matthew's MAKE-A-WISH TRIP!
Wishes DO come true...our FAMILY in FLORIDA!! :)

Thursday, September 02, 2010

GONZALEZ FAMILY UPDATE...prayers needed please!

Hola Family and friends!



We hope that everyone has had a WONDERFUL 8 months of the year and are ready for the last couple of months left of 2010!!! As for us, well, it has been DEFINETLY an UP and DOWN kind of year. So much has happened in the last 8 months that sometimes I am just in awe of what has gone on!! J I haven’t give anyone on update in a VERY long time so I thought I would go ahead and get one out…



Well, as a family all is wonderful. We are enjoying life and being together as a family. Nothing makes us happier than when we spend time with each other. Having the blessing of being able to be together and watch our children grow, is just such a GRAND experience and we THANK GOD everyday for such blessings!! We have done a couple of camping times. This summer, we took a 2 weeks vacation and did some RVing and spent some time at the coast. Just tons of FAMILY time. Since we have a pool, boy, we have DEFINETLY had some great use out of it. The boys LOVE going swimming!!



Well, our little alex is now 8 YEARS OLD!!! Wow, it is just AMAZING to me to have an 8 years old in our house. And he is GROWING by leaps and bounds. He is out of his 5 point harnest and into a booster chair now. That is a big thing for him. He is such a cutie. He is now in 3rd grade and doing FABULOUSLY in our homeschool work. He has a Monday playdate and a Tuesday PE class and he LOVES it!!! J just watching him play with other kids, is great. We usually have a very busy schedule and he still manages to IMPRESS me in how smart he is. Just watching him think his way thru a problem or read something and then remember what he read and know what it talked about is just so amazing to me. He loves his baby brothers and just has so much fun playing with them. He is such a GREAT big brother!! J



Then there is Matthew. Well, matthew is now 6 years old. Again, AMAZING! He has been thru some rough roads with him since the beginning of this year. Lets see, he started the year off with RSV, went on to have KAWASAKI SYNDROME and was hospitalized for 4 days, and now, well, the scariest of all things is happening to matthew, and we are asking for MANY MANY MANY PRAYERS for this little boy. For a while now, he has been REALLY restless during the night and was ALL over the place, so I called his neurologist to let him know that SOMETHING was going on….well, On June 29th, he had massive seizure that we had to be taken to the hospital via EMS….he then had a 24 hour video EEG done and come to find out that he was having seizures in the front and back ALL THE TIME. As he lay sleeping at 0700, the dr walked in and was watching his monitor and said that he was having seizures the whole time…that was just so HEARTBREAKING for me to hear! I knew SOMETHING was going on but was so hoping it was not THAT!!! So, we were placed on a new seizure med called VIMPAT on top of his other 2 seizure meds…and these sezirues are VERY different…not like anything we had ever seen. The other scary thing is that he stops breathing with these seizures and we have had to BAG him, which we personally have never had to do. Usually the EMS crew does it. Well, not anymore…and what a horrible feeling it is to have to BAG your son with oxygen, have him BLUE, totally unresponsive & his Oxygen sats down in the 40’s…well, since the 29th of June, he has had a 2 more seizures in July and 5 in August and here we are on September 1st and I PRAY that they finally STOP!! If you can imagine, it went from 2 seizure in 2 YEARS to 8 seizures in less than 2 MONTHS….A new seizure med was started on Aug 30th and we are back on CLONOPIN so we are now officially up to 4 seizure med….not HAPPY! And it makes HIM not happy. You can tell it is definetly affecting him because he is REALLY sleepy and very irratible! My poor little boy. we are now thinking of getting some NIGHT NURSING…yep, the one we said we would NOT get but because these seizures are not your regular ones and they are happening at ALL hours of his sleep, I am not getting much sleep at all. I actually have a CRICK in my neck from turning to look at the monitor every couple of minutes…I need someone to watch him sleep!!! L So, what we are going to start in this coming month is, he is going to be placed on the KETOGENIC DIET which has been known to help with stopping seizures. So, they will take him off of his current G-TUBE formula (peptimum, jr) to a KETO-CAL formula. I read up on it and basically, it is a LOW-CARB diet…I THINK we will be admitted into the hospital for a couple of days…NC Baptist I think…and if he does well on this, then HOPEFULLY the seizures will have stopped, maybe some meds taken off and all will be well..PLEASE JESUS, let it all go WELL!!!! But other than that, he is doing AMAZING!!! He is in 1st grade now and he is getting SOOO BIG! He is so smart too. I love when he talks to us or he tries really hard to tell us something. And the BEST thing that came out of his seizures is that he is EATING ORALLY LIKE A CHAMP! Yep, my little boy is LOVING eating. He wakes up and signs EAT and he eats breakfast, lunch and dinner. And I am talking he EATS not just nibbles. Could be why he has gained so much weight!! He is now 42 lbs!!! he is getting HEAVY! But he is such a cutie and he is getting so strong. Unfortunately, with these recent seizures, he has had some weakness now that is causing him to be MORE LOW TONED….i just pray that he gets his strength back SOON!!! He loves his brothers and loves to challenge them! He is SOMETHING else when he gets MAD at one of them. He will sit there and YELL at them if they are having issues. So cute!!! That is our little boy!!



And then there is JOSHUA who is now 3 years old. Wow, this little boy is SOMETHING else. I love him SOOO MUCH but he is the 3rd child…he is the one that gets into EVERYTHING…and he is currently into the terrible 2 at 3! He favorite word is NO or UH-HU…and he is a little con artist cause he will say in a whiny voice’no alex, stop’ and I will catch him saying that and alex is across the room or something and alex is like, I am not even touching you!!! So, he tries to get brother in trouble all the time. He is also very LOUD…he loves to sing but LOUDLY, he loves to play but play LOUDLY…my ears are usually ringing by the end of the day. But he LOVES to play with alex and he love to tease matthew. Such a CUTIE!!!



Well, james is doing very good. He is at a new unit here in san Antonio so that means that we are STAYING in san Antonio!! J either way I would have been happy but now especially with Matthews seizures, I am so glad we are staying here..we are hoping that he gets his promotion soon so then we can start looking for a new home…he finished PHASE 2 of his BNOC school….we REALLY need a one story house….matthew is getting soooooo heavy and with his recent seizures, he is almost too weak to go up the stairs on his own and we have to carry him and he is HEAVY!!! Anyway, james is doing well and he is gearing up for HUNTING SEASON. Yep, let the shooting begin! One of his favorite sports! He started TODAY at his new job and it is at CAMP BULLIS now so a bit closer than where he was at before. I feel sad for him because his whole unit before is now all scattered around TEXAS …they were sooo close. I know they will stay friends but no longer work together….



As for me, well, so-so…I am ALIVE and I am BLESSED so I really shouldn’t complain. But since my surgery back in feb 2010, my body has not been the same…I have been back and forth to the doctors and surgeons trying to find out WHY I am continue to have gastro issues…I have had colonoscopies, blood work, scopes, etc and they still don’t’ know what is going on. I wonder if they injured something while they did the surgery…anyway, I just wanted it FIX cause it is LIFE ALTERING what I am going thru…my fibro is kicking my butt too, but again, with all the stress of the surgery and now with matthew seizures, my little body is going nuts! J



But THANK YOU GOD, our little family is doing well. We have started up on our school year again and we are enjoying doing classes. Waiting for the HOLIDAYS to come. It is just around the corner now!!!! We take one day at a time and we take our evenings very seriously. We have tried to keep matthew to a strict in bed time of 8:30 to make sure he gets plenty of sleep. So needless to say, we are ALL on a schedule now. We tend to notice if we have had a LONG day, he will end up with a seizure!!



So, we hope this letter finds everyone doing AMAZING and well. We ask PLEASE if you can please pray for our little boy, MATTHEW that his seizures resolve and he has them NO MORE. I am so sad for him because now with all these meds, he is not the same little boy…he is really tired all the time and GRUMPY!! GOD WILLING these seizure meds GO AWAY!!!



Thanks again, everyone!! until next time, TAKE CARE AND GOD BLESS!!!



James, Maria, Alex, Matthew, & Joshua

Thursday, August 26, 2010

we are up to 6....

unfortunatly, the seizures are back...we are up to 6 szs now in just under 2 months...that is WAY WAY WAY up from 2 seizures in OVER TWO YEARS....i am so sad about my baby boy matthew...he had a sleep study done on tuesday night. their thought is that maybe he is having apnea episodes which in turn are causing him to have seizures?! we shall see how he did in his sleep study. all i want to know is WHY?!?! now i need to be very clear about this, it is not 'why him, God?" i don't THINK i have ever thought that, even when he was born with a heart defect. i love my son JUST THE WAY HE IS and i am very BLESSED to have him with us!! i am asking 'WHY is he having seizures again?' how can i HELP him...what is the cause so that we can try to fix it....that is the WHY i am thinking and asking...how can i help my little man...what is going on?! anyway, he had another sz last night...2 in fact...my poor little guy!! he slept thru them but he remained on oxygen all night long and he seemed to sleep very well...

i am praying that SOMETHING comes up that will explain why he is having these sz...

Wednesday, August 11, 2010

need to get back to blogging....

yep, it has been a LONG TIME since i really have been up to date on my blogging...life seems to get in the way of it....but really, there is really no reason...FACEBOOK is my new favorite place to post stuff but why i do it there and not here, well, i don't know! i SHOULD do it more often here because this is forever and facbook just keeps rolling by....

sooo, life has been great....my boys are all doing wonderful, THANK YOU GOD...we are getting ready to start our school...maybe next week?! we have all our curriculum, THANK YOU GOD and alex is ready to get going...i am just ready to get started back on our schedule...I LOVE HOMESCHOOLING and yestereday, i joined the NORTH WEST HOMESCHOOL EDUCATORS and i am really excited! field trips, tons of fellowship for me AND the boys...so i am excited...just need my history and science book and that should be this week! :)

wow, our pool is GREEN!! YUCKY! yep, after our birthday party on the 1st, with all the kiddos jumping in after playing hard and sweating all day, it just killed the pool!!! :( and since james is gone for 2 weeks, who gets to clean it up?! ME!! OH WELL...i just hope i can do it...i am PRAYING that today's treatment is IT...if not, it is dumping the water and doing it again...sign...pools are sooo much work but so much fun..

Tuesday, August 10, 2010

HAPPY 8TH BIRTHDAY, JAMES ALEX II!

HAPPY 8TH BIRTHDAY, JAMES ALEX II!!

My baby boy Alex is 8 years old! Wow, we have been SOOO BLESSED with this little boy…THANK YOU GOD for this little boy. What a blessing he is in our family. I can’t believe he is now 8 years old. He is such a happy little boy. Always ready to help us whenever we ask and SO polite! He is the best big brother ever. Always helping out with the boys and being so calm and helping so much with his baby brothers. With matthew, he is always willing to help me with getting whatever I need…medical wise, wow, this little boy is amazing when it comes to drs appts for matthew. Being WONDERFUL there at the different appts and when matthew is in the hospital, he does great there. He has unfortunately had to witness several of matthew’s massive seizures and he has great at getting me the phone to call 911 and going downstairs to open the door for EMS….just such a BRAVE little boy! so proud of him! And for Joshua, he LOVES his baby brother and he LOVES playing with him. Finally, someone who he can play with and run around with and Joshua looks up to him…Joshua follows him everywhere! So cute…wants to do whatever Alex does! And so smart…he is now in the 3rd grade and he loves being homeschooled. He does so well in all his studies and just keeps amazing me on his memory of everything and what he learns. He ‘gets’ it quickly. He needs little if any help with his studies. He usually does it all on his own, only asking for help if he just doesn’t get it. So proud of him. And his belief in God is just amazing to watch. He loves learning all about HIM and he loves that our homeschool curriculum is based on our faith of Catholicism. He probably knows more than we do about it! And such a sponge when it comes to something he loves. And just loves his LEGO’s and his WII games. He is also just amazing when it comes to a computer. Since the age of 4, he has been able to get on, get to where he wants to go and play and get online like a pro! And he sits there and watches YOUTUBE and learns how to make LEGO’s figures and ships and such. Wow, his creations are just amazing.

Our son, Alex…what a BLESSING given to us from GOD. Back when we didn’t know if we could ever carry a baby to full term, here he was. He is our RIPLEY’s BELIEVE IT OR NOT baby (if you want to read his story…GO HERE) and with his pregnancy, daddy was gone for ALL 9 MONTHS because 9/11 had just happened and james was activated to Texarkana!!! But he made it for the birth of our FIRST BABY BOY…BLESSINGS…

SO, to end this, THANK YOU GOD for blessing us with this beautiful baby boy and THANK YOU GOD for every beautiful second that we have had with him…HAPPY BIRTHDAY, JAMES ALEX II!!!! WE LOVE YOU SO MUCH!

Tuesday, August 03, 2010

MATTHEW had a sz last night...

‎*yawn*long night..wow, i was just talking to my TAPVR friends about what it felt like 4 him to have a sz in middle of night & have to leave ur other kids..and it happened. that was so scary! but we r HOME & he looks good..i can't believe his O2 sats got into the 30'S & his lips turned BLUE! that was the FIRST time i personally had EVER had to BAG my boy!! they always did it in the ambulance but there was NO WAY i could wait! to see him not responding, O2 monitor going crazy, sats in the 40's & 30"s and knowing you have to BA...G HIM or he is going pass out or worst...that was really SCARY! Thank GOD i had his airway bag set up pinned to the wall above his oxygen and it was complete (thanks to METHODIST & our last hospital stay where i took the bag from the room) and i hooked it up and put it on him...wow, that was a crazy rush...i say that because so many emotions are going thru your body and then i had james call 9-1-1 and then we switched and i had to get his diastat in him ASAP....(valium to help stop his sz)...he sz for 25 mins that we actually saw him plus how ever long he sz before his monitor went off...scary!!
but, these sz are really different than the other ones....he seems to be responding to the DIASTAT with these so, i think we are going to NOT call EMS until after his diastat and he is STILL szing...the DIASTAT has seem to work...so i think i will give the DIASTAT after 3 mins....support him with oxygen and watch him...after another 5 mins if he is still not responding or still szing, i will call EMS...the decisions i have to make for my boy....you never think you would make THOSE kinds of decisions for anyone you love....but thru my FAITH and thru PRAYERS he and WE have come a long way...THANK YOU GOD FOR MY BOY!!!

thanks all for any thoughts and prayers...we are going to take it EASY today...and did i mention that my dh is leaving for 2 weeks this saturday?!?!? yep, going to be STRESSful the next 2 weeks on my own and with his sz....**sigh**

Sunday, July 18, 2010

Prepping for tomorrow

Such a PAIN in my BUTT!!! I have a colonoscopy tomorrow and the prep for it sucks!!!:((((( but, God willing it will get me fixed up.... Just have not been the same since my surgery back in feb....going to be a LONGnight!!! Can't wait to EAT something tomorrow....haven't eatena thing in over 24 hours now.... Can just TASTE a burger and fries right Now.....yummy!

Tuesday, July 13, 2010

Jelly stone rv resort


Awwwwww......loving this new camp ground here near canyon lake....the boys love that it is yogi bear! They have activities everyday for the kids....can't wait to explore the place tomorrow....James noticed that there are TONS of familiies here and it is very clean and nice! We are here for a couple of days....

Wednesday, July 07, 2010

Am enjoying my vacation with my family!

We left yesterday and have enjoyed being together away from the house... We are staying at the hawthorn inn and it is a beautiful room! Today we went to the USS lexington and had a yummy dinner at Blackbeards and now just cruising around looking at the beach...

Friday, June 11, 2010

Dad's Rosary...

today, we had my dad's rosary...it was very nice and to hear nice things from those of his co-workers at the church...it seemed that he still worked at his church lighting the candles at the TABERNACLE...that is sooo AWESOME to hear...

Sunday, June 06, 2010

My dad passed away today...

well, we got the call at 9am....we were in church and when i got out and looked at my phone i had a message fromt he hospice place...when i called over there, they said my dad had passed away unexpectedly at 8:55am...i say unexpectendly because hospice can usually tell the family and give them a couple of HOURS before they think the pt will pass away...there are certain signs...well, my dad had a GREAT Blood pressure at 7:30 in the morning....the dr was making his rounds and before he could make it there, a nurses aid walked in to his room to check on my dad and he had just suddenly passed away....i am sad that there was no one there to be with him BUT i was also happy that the ONE thing that i had wanted (for him to see me again, to meet his grandkids, to hear himself called GRANDPA and to hear me tell him that i loved him and he told me he loved me) happened...i am AT PEACE as i know that he was too...he saw all his brothers (except one and one sister that was too ill to travel) and he saw NUMEROUS neices/nephews, cousins that came to see him...that was important to ME and i know it was to him too...he had lived a very solitary life after he and my mom divorced...he had not only distanced himself from ME but from ALL his familyl....

sooo, REST IN PEACE, DAD....no matter what, I LOVE YOU and will MISS you as always...i am glad we got to RECONNECT before you passed away and i will have no regrets....GOD BLESS....

Friday, June 04, 2010

ANOINTMENT OF THE SICK for my dad...

well, today, a priest from his parish came over and gave my dad his last rites....it was a BEAUTIFUL prayer service for him...he had a brother, sister, a niece, son, daughter (me), and several kids there to be with him at his bedside....it was really nice and we prayed over him and we were each able to give him a blessing...it was really really nice....

we were there for about 3 hours and then my brother and my family went to go eat dinner...very nice...i had realized that that was the 3rd 'last rites' i had been to....my MOM, my son MATTHEW and now my dad....wowowowow....

Thursday, June 03, 2010

My brother came home today...

i picked him up from the airport and we went straight to see dad at the hospice center....we had 2 of the 3 kids with us so it was nice....they did GREAT and dad opened his eyes and say my brother and he met his 2 grandkids....he smiled when he saw them....that was nice and the boys said hi to him and touched his hand...

my brother was able to say hello to him and he acknowledged him and everything...he was able to see my bro and my brother could talked to him...it was really hard to understand him and he was really restless....his oxygen was not in his nose and apparently he didn't like it there at all...well no wonder, they had it at 10lts with NO HUMIDIFICATION!!!!!! i told them they needed to get some on him! that is PAINFUL!! i cant' even imagine how uncomfy that must have been...

anyway, all is well...we went to his house and my brother went in to see how things were....and he had good neighbors that came out as soon as my brother showed up to talk to him....that was reasurring...so much to DOOOOO!!!!!!!

Wednesday, June 02, 2010

My dad was moved...

today to the hospice facility....i am sooooooo happy he agreed to go there...i know they will take good care of him....i passed along the word...

Tuesday, June 01, 2010

Went to see my dad...

well, THANK YOU GOD i was able to go see him....if we had been there even 15 mins later, we would not have been able to TALK to him...but instead, i was able to talk to him and show him his grandkids pics (he has never met them)...he saw me and talked to me and didn't reject me, TAHAN KYOU GOD....after about 15 mins, they had to medicate him because he was breathing soooo fast and hard...it was hard to watch...after that, he dosed off and was finally breathing comfortably...stayed with him for about an hour then went to mass with my aunt and then came back for little bit more...as i was leaving...i kissed him and told him that i loved him...he opened his eyes and told me 'i love you too'....

i am at peace...i pray that his family comes to see him....i know that it would bring him PEACE...and also peace to those of his family....everyone has been estranged so i PRAY that everyone can just go and see him....he will be the first of the brothers & sisters to pass away when it happens....

my thoughts and prayers go with him....

Monday, May 31, 2010

HAPPY MEMORIAL DAY!!!

THANK YOU to all the MILITARY NEAR AND FAR for your services especially to all my family and friends that have served in the miliatry!! my beautiful HUBBY that we are soooooo proud to support and LOVE!!! THANK YOU, BABE!!!

onto my dad...well, i got a phone call from HOSPICE that told me that my dad had cancer in his stomach and liver....he does not have many days to live!! wowow...very hard to hear....but he was threatening to leave and go HOME but there is no one to take care of him!!! i can only PRAY TO GOD that he realizes that and he can go to a facility that will care for him....wowow...i am so sad and am in shock....