Wishes DO come true...our FAMILY in FLORIDA!! :)

Saturday, May 21, 2011


May 21, 2011…

Praise God, our miracle son is 7 years old today. What a BLESSING it has been to have him in our lives for every SECOND of it! We THANK GOD for those seconds everyday knowing how close it came that he might not have been with us. We are THANKFUL and we are BLESSED!!!!!!!!

Matthew had a rough start in life. He has been thru so much in his 7 years of life…most people could not even IMAGE what he has gone thru. But thru it ALL, with everything, he has ALWAYS been such a HAPPY BOY…yes, happy! We always say that he MUST have seen GOD during those first 5 days of life because he is always so happy. We know that GOD the Father holds him, shelters him and looks over him everyday.

Now, I know most of you have probably heard his MIRACLE BIRTH story so I won’t put those words down again. BUT if you have not heard about what a TRUE MIRACLE he is, please follow this link to our BLOG and you can read all about it. TRULY A MIRACLE FROM GOD!!!

I want to just write about who MATTHEW ISAIAH is….there are so many WORDS that describe and have become Matthew. He is a MIRACLE…when he was born his prognosis was the cardiologist did not think he would make the 15 min drive to the other hospital. He was that sick. His heart defect was so bad (obstructive) and his lungs were so bad…he was a blue baby. After his 8 hour open heart surgery when he was 8 hours old, at 5 days old being taken off the ECMO (heart lung bypass machine) to ‘die a natural death’…the MIRACLE that when almost 24 hours after being taken off and given the grim news that he would not make the night, he is awake, wiggling toes, grabbing our fingers and not as BLUE as he was on day 5!!! And day after day of those first 98 days in the hospital, proving doctors wrong….doctors never able to give a prognosis or tell us WHAT to expect because at every turn, GOD thru MATTHEW would prove them wrong or do the complete opposite!!! He pulled out his vent a couple of times during those days and during all the drama that that caused he would sit up and SMILE such a big beautiful smile and the RTs, nurses and drs would just MARVEL that he seemed to KNOW when he was ready to be off the vent and do AMAZING….of leaving the hospital WITHOUT a trache and a vent that they drs wanted him to leave with because he would ‘not grow’ because of his rapid breathing….going home and doing AMAZING until he was 5 months old and started SEIZING and given a diagnosis of INFANTILE SPASMS and being told to ‘video tape what he was doing at 5 months because he may never do anything more than that’….another miracle when INFANTILE SPASMS didn’t materialize and SHOCKING the neurologist because in all his 20+ years of practice he had NEVER had a pt diagnosed due to the earmark TYPE of seizures and not progress and continue with the infantile spasms…He is so STRONG…stronger than ANYONE can be…he has just been such an AMAZING little boy….thru all the hour/2 hour long seizures where he has to be rushed by EMS, being intubated, being poked, being bagged because he stops breathing…hospitalizations due to all his seizures, his respiratory condition (he has CHRONIC LUNG DISEASE)…ALL his numerous illness here at home where he is on and off oxygen, oral steroids, antibiotics, 6+ nebulizer treatments a day and being suctioned and just recently, he is now having to wear a CPAP machine while he sleeps and just being such a TROOPER and not fight it and just ACCEPTS IT…that is something that is sooooo STRONG about him…he will be getting a blood drawn, getting suctioned, getting some procedure done, a sleep study with all the wires on his head, being messed with medically and thru it all, he might be crying but he doesn’t FIGHT….he does pull away, he just cries and doesn’t fight…it is just so amazing to see him be so strong…it breaks my HEART because I know it is because he has been thru soooo much that that this is ‘normal’ is why he is like he is…the medical staff are just in awe of him because I will hold his arm down and he won’t try to kick, punch or anything else, he will just cry and if I have my phone out or something is distracting him, he won’t even CRY while getting a blood draw….my beautiful baby boy has been thru so much that it is just something ‘normal’ for him that he just accepts it…and when he is done……HE SMILES!!! This big beautiful SMILE…what a miracle and blessing this little boy is in our family….we NEVER keep him home when we are out and about…he goes with us EVERYWHERE…we take trips as a family….enjoy RVing….parties….normal everyday stuff like groceries, church, everywhere…..we are so PROUD of him and we are so IN LOVE with this little boy…he brings so much light in our lives and so much JOY!! To remember everything he has been thru, to remember how CLOSE it was that he was ALMOST not going to be a LIVING part of our lives…..we embrace, feel blessed, & are THANKFUL for every second and give PRAISE to GOD for this little miracle in our lives.

If you have never actually MET Matthew but have followed his life since he was born, know that we WISH that you could meet him so he he could know that you have been a part of his life because you have been out there THINKING and PRAYING for him. He would grace you with his love, his hugs and his SMILES…and if you have a phone, and you let him play with it, well, you would have made a FRIEND FOR EVER!!! This little guy LOVES phones and we actually have to talk code if we talk about our phone or where it is and GOD FORBID it rings and it is hidden some where and he hears it…it’s OVER!!! The phone is HIS!! He is such a great little guy. Always happy and always HAPPIEST wherever DADA is at…his favorite word in the world is DADA…I really need to video tape him when dad comes home…the JOY he shows makes you want to cry! Although thinking back if you put on his favorite movie he kinda does the same think…..JUST KIDDING! His love for dada is just AMAZING…

So THANK YOU ALL for all these last 7 years of thinking of Matthew and PRAYING for Matthew. We are BLESSED that we ‘know’ you and we are BLESSED that you love our son, as we do.

HAPPY 7TH BIRTHDAY, MATTHEW ISAIAH. We PRAY that there are MANY MANY MANY more. WE LOVE YOU and are so BLESSED and HAPPY that GOD has been so amazing to us that he has bless us with YOU in our lives. You are such a JOY to us and we are sooooooo PROUD OF YOU!!!! WE LOVE YOU, MATTHEW ISAIAH WITH ALL OUR HEART!!!! GOD BLESS YOU ALWAYS!!!

Maria, James, Alex, & Joshua