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Matthew's MAKE-A-WISH TRIP!

Matthew's MAKE-A-WISH TRIP!
Wishes DO come true...our FAMILY in FLORIDA!! :)

Tuesday, July 14, 2009

We are on vacation!!!!!

Hey there. Just wanted to say that we are officially on vacation!!!! One wonderful week together
rving at corpus Christi....we are at theNAS naval base rv park....it is beautiful here and so open
and spaceous!! we love it! We will be here for one whole week! Can you believe it $90 for the whole week?

I will post later when I can ....

Saturday, July 11, 2009

GIVE KIDS THE WORLD NEWSLETTER!! :)

HEY THERE!!! just wanted to share withever one the GIVE KIDS THE WORLD newsletter!!

here is the link to that site:

http://www.gktw.org/newsletter/mm_summer_2009.html

ENJOY!!! :)

Thursday, July 09, 2009

ME......

hello and WOW...it has been a LONE time since i have been around here!! sorry...life has been so busy with getting a new pool and just being busy in everyday stuff!!

well, this post is about ME...such a wierd way of doing it but i don't think i have many 'ME' post here!!! :) and this is my blog....hmmm??!! but as of today, i FINALLY after several years, been able to get some important APPOINTMENTS done!! for ME!!

sooo, i had 3 APPOINTMENTS that where for me and my issues...

sooo, last week, i had an appt for my ARM...i think i have talked about this right arm before but i FINALLY, 3rd times the charm, had a DOCTOR that would HELP ME with my ARM!! you see, my forearm hurst SOOOOOOOO BAD and can bring me to my KNEES when someone hits it or even taps it...i always say that if you are EVER mad at me and want to get at me, just hit me on my ARM!!! i start to CRY I( and you KNOW i am not a crier) when it is hit...it is osoooooo intense! anyway, i have gone 3times before on this issue in the last 2 years and the first time, they told me it was CARPAL TUNNEL SYNDROME, gave me a BRACE and sent me on my way....NO RELIEF...so i went back and this time , they told me it was TENNIS ELBOW and gave me a DIFFERENT brace and vitamin D and excersises....again, with NO RELIEF...so, this time, i went in AGAIN, armed with I AM GOING TO GET TO THE BOTTOM OF THIS additude and i had an AMAZING dr that actually listen to me and REALLY checked me out....she doesn't know what is wrong but now the pain has radiated to my SHOULDER and it is getting REALLY REALLY BAD....so, i am getting an MRI of my shoulder and arm, she is going to see what is wrong and MIGHT send me over to NEUROLOGY for my arm if there is nothing showing on the MRI and for my shoulder, she thinks maybe a TEAR and maybe i might need a steroid shot?!..but SOMETHING IS FINALLY BEING DONE!!! soooooooo happy!!! I pray nothing is wrong but still, at least they are looking at it!!

sooo, then yesterday, i had an appt with a DIFFERENT dr (but still in my team) on my FIBRO issue....i also did lab work for a cholesterol screening and such (which was AMAZING!! :) my bad colesterol(ldl) was 69, my good cholesterol(HDL) was 92 and the only thing HIGH was my triglycerides at 195...but she said because my good cholesterol was so AMAZING she said it canceled out any of the BAD!! :) soooo, YAY for me! anyway, onto the FIBROMYALGIA appt...well, we talkeda bout it and such and i told her that since i was diagnosed back on july 2003, i have not been followed by a REUMETOLOGIST since then!!! yup! so, she ordered some blood work and she did the PRESSURE POINTS on me at i had 16 out of 18 points that HURT!! YIKES!! it was horrible...i am ALWAYS in soooo much pain but i have just learned to deal with it...i couldn't really do anything for myself because i was either trying to get pg, pg, nursing so i didn't like to take meds! she got onto me and told me that i needed to take care of ME!! so she prescribed me FLEXIRIL (which i took last night and it PERECT cause i didn't feel tired the next day) and some 800MG IBUPROFIN...she said she would try to get me in to a REUMOTOLOGIST appt after i get my blood work ( i did some more blodd work today)...

and then TODAY, i had my appt for GASTRO/SLEEP...well, it was the same doctor as yesterday and we started to talk....i told her my previous history, about beind diag since i was 15 and having my NISSEN FUNDO in 1999 and that since i had that, i had NOT been back to a gastro since THEN!! i started to think about it and thought i need to get back to see a gastro....also, the last 2 years, i started to get HEARTBURN again, tummy issues and diahrea...also, my chest pains and such...so i KNEW ti was coming BACK!! the nissen is suppose to hold for 15 years but since i had had 3 kids since it happened, i figured that maybe the pressure of having the kids might have added some years to me! THEN i started to worry because i USE to have polyps (in the colon) before and i had not been checked in 10 years and then the reason that i had the NISSEN is because i had the begining of BARRETS ESOPHAGEAL SYNDROM which is basically ESOPHOGEAL CANCER...and i had not had a check up in over 10 years...yeah, that is BAD!!! :( anyway, i don't know WHY i started to think of that but i did...so, i am going to get a consult to GASTRO and while i was at the office and she was doing a check up on me, she noticed something...she was like, WHAT IS THAT? and i was like, huh? she said that she had not noticed that yesterday and when she pointed it out, i told her that i had had that for a while and i always that thought it had to do with my FIRBRO and being stressed...well, she said, i don't think so...and now i have to have an ULTRASOUND on my neck/shoulder because she said that there is a MASS there, which i saw and now i am SLIGHTLY freaked out about....she said that it is not normal but she didn't feel any lumps more of a squishy MASS on my shoulder...i just pray it comes out ok!

soooo, there it is...a post about ME!! :) and most of it is good becuase i am finally taking CARE of ME!! that had been on the back burner for so long...but now, it is about ME and taking care of ME!! :) hey, i like that word...MEMEMEMEMEMEMEMEME!! LOL

anyway, so now i am on NEXIUM, FLEXIRIL, IBUPROFIN and i am getting an MRI and ULTRASOUND and i am getting consults to GASTRO for sure, possibliy to REUMOTOLOGY and NEUROLOGY...i have had 2 panels of BLOOD WORK done...wow, all in a weeks time! not too shabby! i just pray that all the results are just as great as the cholesterol screening!! :)

Sunday, June 28, 2009

the POOL IS UP!! :)

YES, after much talk back and forth, we finally did it....we bought an ABOVE GROUND POOL!! :) soooo, excited and happy! our boys LOVE to get in the water so this is a WELCOME addition to our family...it is nothing fancy but it is PERFECT! it is a 15' x 48" pool and it is sooooo awesome! the boys are all so excited about getting in! they can't WAIT for it to fill up!! neither can WE!!

ANYWAY, I will have to upload some pictures of it...we decided to put the pool near the privacy fence...it is a secluded spot with nobody's windows looking onto it!! i LOVE THAT SPOT! so excited it fit just right!

anyway...more pictures coming SOON!

Saturday, June 20, 2009

so i am reading this book and WOW...

i am a BIG BIG BIG romance reading kinda gal..i read about 2-3 books a week on a good week...just my way of 'getting away'...anyway, i am reading this book by LORI WICK "bamboo & lace" is the name and i hadn't really realized that it is Christian based and it is pretty cool and giving me INSIGHT!! :) gotta love that...well, there have been a couple of passages that have really hit home and made me THINK...and i just started the book but i just had to blog about it!! sooo...

just a quick thing"IS God in charge here or not? when did He call and tell you to take over? be yourself with these people! Say things you're thinking and stop fearing their rejection." and of course that is soooo me! i am SOMETIMES struck mute because i want to say something but i FEAR being thought of wrong or saying the wrong thing...i need to trust more in GOD and just know that he will put the words i need in my mind!!!

and then this: "I use to get angry with Evan and Peter when they ddidn't do things my way. Then I understood that all anger is directed at God. If He's in control-and of course He is-then my growing angry at any situation menas that i disagree with His rule and authority" and WOW...well, i tend to get angry with alex a BUNCH when we are doing school work and he is just soooooooo lax and not really doing his best and just taking his time...why? he is doing his work....but it FUSTRATES ME because i know, that if he just worked a bit FASTER, he could finish and be able to play and such...i don't need to do that!!!

anyway, just something i am reading and is making me think things thru!!! so far so good on the book too!! :) pretty cute!

Saturday, June 06, 2009

so james is OFF!!

yep, today is the start of 2 weeks without our beautiful DH....we dropped him off early this am before 6am and don't expect him back for about 14 days....awww....and as soon as he was gone, i was OFF CLEANING!! what is WITH THAT? whenever james leaves, i CLEAN....my house is NEVER as clean as it is when he is gone...i don't know if that is good or not....

anyway, i have been REALLY LAZY in updating my blog but starting today, i am going to up load all the pictures from the party and blog about what an AMAZING birthday party we had for MATTHEW....i just need to get a move on it!!

Sunday, May 31, 2009

GETTING BAPTISED!! :)

so today, we BAPTISED TRISTAN (our new GOD son!), JOSHUA & finished getting MATTHEW baptised....he WAS already baptised in the operating room on his day of birth but he had to be introduced to the community and annointed with the oils! it was GREAT!!!

our son JOSHUA Godparents and our family have a GREAT bond....trisha (my cousin) actually introduced james and i!! and she met HER hubby that day of the party where i met james too!! :) we were PADRINOS in thier wedding and they were our PADRINOS in our wedding....we baptised their son Tristan!! :) it was a really nice ceremony...the decon said that that was the FIRST time he had ever baptised someone that had had an EMERGENCY baptism!! he said it was REALLy specail and rare for that to happen...he said that most babies don't make it....such a MIRACLE our little guy is!

so, here are some pictures of that beautiful day!


















Saturday, May 30, 2009

soooo, we had a BIRTHDAY PARTY....

for matthew!! :) i know sooooo last minute but it just couldn't be helped! we decided about 2 weeks in or less that.....but it went SOOOO WELL! we had NEVER had so little time to put it all together...we also had a BAPTISM on SUNDAY for both JOSHUA, TRISTAN (i am a GOD MOTHER NOW!!!) and MATTHEW!!! soooo we were REALLY BUSY!

anyway, we had a GREAT turn out and it was SOOOO NICE to see so many of our friends and family there!! we had about 60 people there...just PERFECT! sooo, i just wanted to share with you some pictures of this day!!

YUMMY!! CAKE!


ALEX HITTING THE PINATA! (THING ONE)


JOSHUA GETTING IN THE ACTION! (THING THREE)


JUST SOME ACTION!! (THING TWO)




soooo happy it turned out WONDERFUL! the weather was just BEAUTIFUL and the wind was blowing just soo....just enough to keep it cool and NO MOSQUITOS!! :)

Thursday, May 21, 2009

went out to dinner for MATTHEW'S BIRTHDAY!

just had to share some pictures with ya! if you can't tell, i FINALLY got my program working to download my pics from my camera (thanks BIL!)...sooo, we went and took matthew out to eat at GOLDEN CORRAL because there is PLENTY of yummy stuff for him to eat there and he LOVES to eat there!! my MIL and FIL and our family went ther and it was just sooo nice to watch him eat and such....towards the end of the dinner, we had the wait staff come and SING for him HAPPY BIRTHDAY and it got me going...i did not THINK that would happen but there i was, CRYING...and i mean REALLY crying! i don't know...it was just so AMAZING to watch him be sooo happy and soo excited as we all sang to him...he was just sooo HAPPY...again, he is FIVE YEARS OLD!!! i remember it well when they didn't expect him to live past his first DAY!!! THANK YOU GOD FOR EVERY SECOND OF MY MATTHEW'S LIFE!!!! it was so neat because a fellow diner gave him $5 and he got soooo excited!!

sooo, here are some pictures of his DAY!!









MY SON.....THANK YOU GOD!

i just had post again.....this morning, when i went in cause i saw that matthew was stirring....i went in and my BEAUTIFUL, AMAZING, SMART, AND MIRACLE OF A BOY was saying something....GUESS WHAT HE WAS SAYING?!?!?!? my beautiful boy was saying..."FIVE, FIVE, FIVE..." OVER AND OVER AND OVER and he had his hand up SHOWING ME HE WAS FIVE!!!!!! he was facing the wall and he was looking at his hand and just saying that with a BIG SMILE over and over again!! :) he turned around to me and held up his hand and kept saying 'FIVE....FIVE!!" just soooooooo amazing! he is so HAPPY that today is his birthday....yesterday, when we told him it was his birthday today he started to JUMP up and down and get sooo happy!!

THANK YOU GOD FOR SUCH A MIRACLE BOY!!! WE ARE SOOOOOOOOOOO BLESSED!!!

HAPPY 5TH BIRTHDAY, MATTHEW ISAIAH!!!






ooooooohhhhhhh mmmmmyyyyyy GOOODDDNNNEEESS!!! our baby boy is FIVE YEARS OLD!!! wow, THANK YOU GOD for EVERY second of his beautiful life!! we have been so blessed to have him in our life....no words can describe the LOVE we feel for this special little boy!! FIVE LONG YEARS AGO, the drs told us when he was about an HOUR old that "we don't think he will make the transport (to the other hospital or surgery)" and they also told us >"i am sorry but your son will not make it thru the night"......BUT BUT BUT....they also told us, "WE MIGHT HAVE A MIRACLE ON OUR HANDS" and one of the MOST important statment made to us was "THERE IS SOMEONE MUCH HIGHER THAN ME (the cardiothorasic surgeon) AND THE DRS WORKING HERE"...an ACKNOWLEDGEMENT that OUR GOD was at WORK on this little MIRACLE BABY BOY!! OUR PRAYERS were being ANSWERED!!! to see him now, MOST don't know the STRUGGLES this little boy has been thru....until you realize that he does not talk, and has MANY MANY scars from surgeries and that he does not walk or eat.....you don't SEE any of that because he BEAUTIFUL BLINDING SMILE and GEORGEOUS HUGE EYES with those CRAZY eyelashes captivate you!! he has never met a stranger (unless he is a DOCTOR/NURSE) that he didn't LOVE!!! he is such a happy boy all the time!! ALL THE TIME!!! we are so amazed that he is OURS!!!

FIVE YEARS OLD....FIVE BEAUTIFUL AMAZING YEARS with him!!! he is the most amazing CHILD ever!! i really mean it! he is ALWAYS smiling and wanting to sit in your lap, give you hugs and kisses and wanting to READ!! he LOVES books!!! he LOVES flipping thru the pages of a magazing to look at stuf...he loves his MOVIES and he LOVES to talk on his COMMUNICATOR! he loves to be where ever we are...he enjoys sitting in his feeding chair and being at the table with us...he loves to chew on his food and loves to eat whatever we are eating...he is so AWARE of EVERYTHING now...just shows how much more he has grown...he is always just so happy....he loves his DADDY and LOVES to be with him!! he LOVES his brothers....his BIG BROTHER ALEX is his idol! he loves to see what he is doing and try to do it too! his BABY BROTHER JOSHUA...he LOVES to torment him! he wants EVERYTHING he has...it is so AWESOME to see him develope MENTALLY because that means he understands EVERYTHING!!

SOOOOOO, MATTHEW ISAIAH....WE ARE SO PROUD TO BE YOUR AMILY...WE ARE SO BLESSED TO HAVE YOU IN OUR LIVES!!! THANK YOU GOD FOR OUR LITTLE MIRACLE!! YOU HAVE TOUCHED EVERYONE THAT KNOWS YOU WITH YOUR STORY!!!

WE LOVE YOU MATTHEW ISAIAH!!!!!!

if you want to read his MIRACLE STORY...click HERE..

you can also see his 4 year MONTAGE HERE...

i will post his NEW montage SOON!!!

Wednesday, May 20, 2009

JOSHUA has a EEG today....

well, today, joshua has an EEG today....and to make that just a BIT worst...it is SLEEP DEPRIVED ONE!! YIKES! so last night, i held him back from sleep for 2 hours PAST his sleep time and then woke him up 2 hours BEFORE he normally woke up!!! and let me tell you, he did NOT want to wake up!!!! he was soooo cute, he was rolling around the bed moaning because i had the lights on and trying to open his eyes! CUTE! he even laid with his head over the side of the bed....just pitifully looking at me!

ok, big question i have been asked is WHY are you doing this?! well, for a while now, some nights when he falls asleep, he starts to TWITCH/spasm pretty hard....and it goes on for about 5 mins or so....sometimes it is so hard that i get STARTLED thinking he is going to fall....he also has had tons of night where he WAKES UP screaming for no reason and sometimes he is can't be consoled....and then the reason is that with MATTHEW having SLEEP SEIZURES, it is just a precaution for us and something to EASE my piece of mind!! i know in my heart that all is well....

anyway, he also got bloodwork done on monday and he was AMAZING!! they had to take out 4 vials of BLOOD!!! and thru it all he was just amazing!!

soooo, i will post when i get the results....any thoughts or prayers would be appreciated.....

Saturday, May 16, 2009

MAKE A WISH FOUNDATION......(MAW)

THANK YOU sooooo much!! this organization was the one that accepted Matthew as a WISH KID....we were soooooo thrilled!!!

soooo, here is my post on this WONDERFUL ORGANIZATION!!! i previously posted about GIVE KIDS THE WORLD VILLAGE and now this is about the WONDERFUL ORGANIZATION that BROUGHT us TO GKTW!!! MAKE A WISH is an amazing organization that grants WISHES to children with life threatening and terminally ill children.....unfortunatly my child falls into this category....but because he did, my beautiful amazing SON was BLESSED with a wish to DISNEY WORLD FLORIDA!!!! a once in a lifetime WISH!! and all i can say is BECAUSE of this WONDERFUL ORGINZATION it happened!!

first let me tell you that i will work HARD to try to bring awarness to this foundation....it is because of THEM that i met so many OTHER families there at GKTW that had been granted wishes....other SPECIAL kiddos and their families that have been thru what my son has gone thru or WORST!! just amazing...they grant these kids their WISH....something that is so special to them and then make them feel like they are the most SPECIAL KIDS OUT THERE!! this foundation goes out of it's way to make these kids know that they are LOVED and that they are HONORED to be with these kiddos and their family....they don't just hand you the wish and are gone...no, they make you feel like they are BLESSED to be in your childs presence!!! and it is all about the child!! this SPECIAL child that has been THRU SOOOO MUCH in their little lives.....they are the REASON that they are here!!! what an AMAZING organziation!!

well, let me let you in on some ways that you might be able to HELP the MAKE A WISH FOUNDATION...

you can DONATE directly TO our local MAKE A WISH FOUNDATION thru this LINK they have several WAYS you can make a donation! you can even donate your TIME to help them by VOLUNTEERING!! some day, GOD WILLING, i would love to be a volunteer there!
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you can buy something from their STORE!!! it is called the MAKE A WISH MARKETPLACE!! you can purchase some items knowing that it goes towards the WISHES of these SPECIAL KIDS!!

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there is an ONGOING fundraising going on for MAW....if you GO to any

MAGGIANO'S LITTLE ITALY
April 30–May 27, 2009


Maggiano’s Little Italy locations across the country will encourage their guests to Eat-A-Dish for Make-A-Wish to help raise funds for the Make-A-Wish Foundation®.

The promotion includes donations through the purchase of feature menu items, gift card sales and the purchase of wish stars.

Over the past five years, Maggiano’s has raised more than $700,000 through this promotion! Please visit your nearest Maggiano’s to help support your local Make-A-Wish chapter

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THEN there is the BETTY CROCKER SIRRING UP WISHES and you can go vote EVERY DAY THRU THE MONTH OF MAY for a certain MAKE A WISH location nearest you and they are granting 12 WISHES IN 12 WEEKS!! to sign up it is FREE and you get some GREAT BENEFITS such as FREE news letters and recepices!! GREAT stuff! i am going to VOTE every WEEK for our LOCAL MAW!! help them make theses SPECIAL KIDDOS WISHES COME TRUE!!
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i am going to also try and update and let everyone know when there is a new FUNDRAISNING EFFORT by MAKE A WISH!!!

take care and THANK YOU MAKE A WISH for my son's WISH YOU GRANTED!!! :)

GOD BLESS...

Monday, May 11, 2009

Matthew has CEREBRAL PALSEY....(CP)

ok....so i KNOW this....but i FORGET THIS!!! today, i had an ARDS meeting at his school for his homebound and to talk to everyone about our future goals and what he has done this school year....it was pretty cool to hear how much he has PROGRESSED!! i love it! soooo, i was talking to one of the therapist and we were talking about what we wanted him to do....and there is another family that i am REALLY close to and what STARTLED me was that she said, "you can't compare matthew to ANYONE ELSE!! he has CP and that makes LOTS of things HARD FOR HIM!!" and that was like a WOW moment....he has been diagnosed since he was a year old....and REALLY, i just was SHOCKED when she REMINDED ME that he HAS CP!!! i told her, that when she said that, it just SHOCKED ME...she told me that it was because we are such wonderful parents that we treat him JUST like the other two so we don't SEE his DISABLITLY!!! and that is it EXACTLY....i FORGET that he has CP...i really do!! with that other little boy who is also special needs, he just started to walk (they are a month apart) and i was soooo excited for HIM....and then i thought to myself...ok matthew, LET'S GO!! YOU CAN DO IT!!....FORGETTING that it is HARDER for him to do THAT and many OTHER THINGS....i don't SEE him with CP.....

anyway, such a SHOCKER but a WAKE UP CALL that he DOES need a lot of work and he is NOT LIKE OTHER KIDDOS!!! i love my son soooooooo much that i dont' SEE his disablities!! such a special little boy....

Sunday, May 10, 2009

HAPPY MOTHERS DAY!!

JUST coming on really quick to wish ALL THE MOMMIES OUT THERE A VERY HAPPY MOTHERS DAY!!!!

my family is my JOY and i always feel sooooo BLESSED to have them in my life!!! i know MANY ladies out there that have wanted children sooooo badley but for whatever reason, they were never able to have children..... we've been blessed 3 times in our life and 2 angel babies....THANK YOU GOD!!

my beautiful boys gave me a WONDERFUL WEEKEND....we did a WHOLE bunch of stuff together as a family...and my boys bought me some BOOKS!!! and then on saturday, after a day of finishing our GARDEN that i have wanted to do for a long time (daddy and the boys did that for me), james and i were able to go take in a MOVIE for the first time in YEARS by ourselves!!! we watched 'X-MEN...WOLVERINE" which i HIGHLY recommend if you like that series!! anyway, it was really nice to just watch and adult movie...but we missed our boys!! our oldest neice watched the boys for us....then on mothers day, gave me a dozen roses and some of my FAVORITE chocolate!! after a great day at church, we had breakfast at our home (barbaco and tamales YUMMY!!) we went to my in laws for a BBQ and just had a great time together!! it is so awesome to see the kids with their grandparents....the love is MUTUAL!!

well, all my prayers to all the mommies out there in the world....BE STRONG, SHOW LOVE, AND KNOW THAT YOUR ARE BLESSED!!!