changing siezure meds...

this morning i called the drs office and we went to see him that am at 945....he is changing his siezure meds. we are coming off of KEPPRA and moving him back over to zonegram...he did really good on that when he was a baby so we shall PRAY that it works! we have to wean him off one while increasing his new one!!

i am still soooo nervous about those siezrues...i REALLY HATE THEM!!! i don't like that i don't know when it will happen....with his illness..i see the progression of slight coughing, congested, wheezing etc.....siezures, one minute he is asleep, the next WAMMM!!!! and they are soooo scary! to see him just OUT OF IT and not responding and his little face just grimmacing and his hands clenching, his o2 sats going down....ascary!! and then i have to give him his rectal valium...man, that is scary! especially since it CAN slow down his BREATHING which happen the last time when they had to BAGG HIM!!!!

and then, i was looking for a place to fill his DIASTAT prescription and man, NO ONE CARRIED THEM!!! and i had just used the last one last night!!! but after calling the base, they were able to get me to get it at the main hospital er pharmacy EVEN with a civillian drs prescription! THANK GOD!! i didn't know what i was going to do!!! i didn't realize how IMPORTANT those are for these kids!!! it could mean the difference of non stop siezing or not!!!

anyway, GOD WILLING he will do well on this siezure meds and not have anymore! that would be AWESOME!!