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Matthew's MAKE-A-WISH TRIP!

Matthew's MAKE-A-WISH TRIP!
Wishes DO come true...our FAMILY in FLORIDA!! :)

Monday, August 07, 2006

spoke to his NEURO TODAY...

WELL, what can i say?! he basically said the same thing about matthew that dr R. said and that is that we are getting to the point where we don't have too many options on medication. we MIGHT do the VAGAL NERVE STIM because he said that it works on the type of seizures that matthew has (partial)....well, i am ALL FOR IT but of course, SCARED AS ALL HECK!!! that would mean another surgery!! he said that he thinks it would work on him.......i just THANK GOD that matthew has the mild case of it because i can ONLY IMAGINE when you have HUNDREDS OF SEIZURES in a day!!!! and it DOES HAPPEN, unfortunatly, to some kiddos!

anyway, we dropped one of his seizure meds in the am back down to 4 ml because it was making him WAY TO SLEEPY!! he would be playing with some toys and then he would just kinda keel over and fall asleep!! and he fought it SOOO HARD!! my poor kid! but now, it is alot better! we are just on watch for him as usual! he seems to be FINALLY getting over the virus he picked up! alex too! YEAH!!! WE shall see what comes next....i will get an appointment to see this J guy for the VAGAL NERVE stime and he will tell us more about it!! i just PRAY he has no more siezures!!! :)

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